JOIN THE FIGHT AGAINST THE DISEASE THAT BURNS THE BODY
FROM THE INSIDE OUT
SJS Canada is a non-profit organization dedicated to supporting survivors, family friends, and caregivers in the SJS/TEN community.
SJS Canada was born in the heart of a SJS/TEN survivor, Sonia Whyte-Croasdaile, in 2012. She battled SJS/TEN for almost 6 weeks and survived a near-death experience. While in the hospital, she was informed that SJS/TEN was a very rare condition.
To her dismay, she faced multiple obstacles in her quest for psychological support. There were no resources available in Canada to support her journey to recovery. The local doctors and specialists she visited had not encountered SJS before. Some had not even heard of the disease. She had no one or nowhere to turn to for support as she encountered drastic changes to her physical appearance.
Sonia purposed within her heart that no other Canadian should travel this journey alone. With the help of her supportive family and friends, SJS Canada was formed.
SJS Canada's Vision
To facilitate an umbrella of services for the SJS/TEN patient community in Canada
SJS Canada's Mission
Our mission is to be the leader in Canada providing support, advocacy, and education for the Stevens-Johnson Syndrome (SJS) and Toxic Epidermal Necrolysis (TEN) patient community.
SJS Canada aims
To advance education by providing workshops, forums, and seminars about SJS/TEN to the public and medical professionals.
To promote health by providing people suffering from SJS/TEN as well as their families and caregivers with access to related counselling, support groups, and information programs
To provide support, advocacy, and education for the SJS/TEN patient community.