JOIN THE FIGHT AGAINST THE DISEASE THAT BURNS THE BODY
FROM THE INSIDE OUT.
SJS Canada is a non-profit organization dedicated to supporting survivors, family friends and care-givers in the SJS/TEN community.
SJS Canada was born in the heart of a SJS/TEN survivor, Sonia Whyte-Croasdaile in 2012. She battled SJS/TEN for almost 6 weeks and survived a near death experience. While in hospital she was informed that SJS/TEN was a very rare condition.
To her dismay, she faced multiple obstacles in her quest for psychological support. There were no resources available in Canada to support her journey to recovery. The local doctors and specialists she visited had not encountered SJS before. Some had not even heard of the disease. She had no one or nowhere to turn to for support as she encountered drastic changes to her physical appearance.
Sonia purposed within her heart that no other Canadian should travel this journey alone. With the help of her supportive family and friends SJS Canada was formed. By current convention, the following terminology is used: the term SJS is used when the disease involves less than 10 % of the total body surface area; and the term TEN is used when the disease involves more than 30% of the body surface area.
SJS Canada's Vision
To facilitate an umbrella of services for the SJS/TEN patient community in Canada
SJS Canada's Mission
Our mission is to be the leader in Canada providing support, advocacy and education for the Stevens Johnson Syndrome and Toxic Epidermal Necrolysis patient community.