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WHAT IS SJS?

What is Stevens-Johnson Syndrome (SJS) and Toxic Epidermal Necrolysis (TEN)

  • SJS and TEN represent different degrees of a severe, acute, life threatening mucocutaneous reaction resulting mainly from drugs.

  • SJS/TEN cause the skin to become red and purple, tender, and peel away from the body. These diseases affect not only the skin on the external surface of the body, but also the moist lining of the mouth, nose, eyes, genitals, and other body parts.

  • Both conditions are considered a medical emergency that requires hospitalization and management of patients is usually provided in intensive care units or burn centers.

  • Recovery can take weeks to months, and there are numerous long term sequelae.

  • Medications are the major precipitating cause and some drugs have a greater genetic risk factor. Newer treatments include safe anti-nflammatory biologic injections like Etanercept.

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SJS/TEN AFFECTS

1-7 Cases per million patients

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WOMEN ARE NEARLY

1.5x More likely to experience SJS/TEN than men

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SJS Canada Vision

5% and 25% in SJS/TEN respectively

HELP US TRACK THIS DEADLY DISEASE……. by registering your illness

Year Of Illness

Causative Agent

Hospital/Region/Country Treated.

In the general population, it has been reported that SJS affects 1-6 per million people every year, and TEN affects approximately 0.4 -1.2 per million people year.

What is Stevens-Johnson Syndrome (SJS) and Toxic Epidermal Necrolysis (TEN)

Your personal stories are beneficial to assist other survivors on their journey to recovery. Every survivor has a very important story to tell. TOGETHER WE ARE STRONGER- so we encourage you to share your SJS/TEN story of the ups and downs, challenges and successes you and your loved ones encounter on your daily journey.

PLEASE EMAIL YOUR SJS/TEN STORY TO : sjsandtensgroupcanada@gmail.com

Our SJS Information Poster & Facts Sheet

WARNING: Images below are graphic in nature. Click to expand the section with caution.

SJS Info Poster

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SJS Facts Sheet

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To Get Involved With Us, Click Here

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