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A brief history

Stevens-Johnson Syndrome Canada (SJSC aka SJS Canada) is a registered, non-profit organization dedicated to spreading awareness about Stevens-Johnson Syndrome, an extremely rare life-threatening medical illness. 

SJS Canada was born in the heart of an SJS/TEN survivor, Sonia Whyte-Croasdaile, in 2012. She battled SJS/TEN for almost 6 weeks and survived a near-death experience. While in the hospital, she was informed that SJS/TEN was a very rare condition.


To her dismay, she faced multiple obstacles in her quest for psychological support. There were no resources available in Canada to support her journey to recovery. The local doctors and specialists she visited had not encountered SJS before. Some had not even heard of the disease. She had no one or nowhere to turn to for support as she encountered drastic changes to her physical appearance.


Sonia purposed within her heart that no other Canadian should travel this journey alone. With the help of her supportive family and friends, SJS Canada was formed.

Her miraculous survival inspired her to create a well-needed outlet to spread awareness about this life-threatening medical illness that burns the body from the inside out.

We are dedicated to providing support for survivors, family, friends, and caregivers in the SJS/TEN community.

Be part of our community and make the difference.

Our Mission

Our Mission:

Supporting survivors and promoting global

Stevens-Johnson Syndrome education, advocacy and research.

Our Vision:

A world where

Stevens-Johnson Syndrome is

widely recognized and understood.

SJS Canada Values:

Stevens-Johnson Syndrome Canada upholds respect, transparency, accountability, collaboration, fostering empowerment and accessibility, and providing support for those affected by Stevens-Johnson Syndrome.

Sonia Whyte-Croasdaile
Smiling Young Man

SJS Canada Aims:

Promote health by providing people suffering from SJS/TEN as well as their families and caregivers with access to related counselling, support groups and information programs.


To advance education by providing 

workshops, forums and seminars

about the SJS/TEN to the public

and medical professionals.

SJS Canada
Strategic Directions:



Stevens-Johnson Syndrome Canada (SJSC) is committed
to sustainability in financial planning and management.


Networking & collaboration

SJSC is committed to building networks and
partnerships with organizations.



SJSC is committed to gaining multiple sources of
sustainable funds.


Education & awareness

SJSC is committed to raising awareness through
education of survivors, medical and general communities.


HR, staffing & volunteers:

SJSC is committed to strengthening our
governance, human resources, and volunteer base.


Marketing & communications

SJSC is committed to developing our
marketing and communication strategy to increase our reach.

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