A brief history
Stevens-Johnson Syndrome Canada (SJSC) is a registered, non-profit organization dedicated to spreading awareness about Stevens-Johnson Syndrome, the extremely rare life-threatening medical illness.
SJS Canada was born in the heart of a SJS/TEN survivor, Sonia Whyte-Croasdaile, in 2012. She battled SJS/TEN for almost 6 weeks and survived a near-death experience. While in the hospital, she was informed that SJS/TEN was a very rare condition.
To her dismay, she faced multiple obstacles in her quest for psychological support. There were no resources available in Canada to support her journey to recovery. The local doctors and specialists she visited had not encountered SJS before. Some had not even heard of the disease. She had no one or nowhere to turn to for support as she encountered drastic changes to her physical appearance.
Sonia purposed within her heart that no other Canadian should travel this journey alone. With the help of her supportive family and friends, SJS Canada was formed.
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Her miraculous survival inspired her to create a well-needed outlet to spread awareness about this life-threatening medical illness that burns the body from the inside out.
We are dedicated to providing support for survivors, family, friends, and caregivers in the SJS/TEN community.
Be part of our community and make the difference.
Our Mission
To be the leader in Canada providing support, advocacy, and education for the Stevens-Johnson Syndrome (SJS) and Toxic Epidermal Necrolysis (TEN) patient community.
Our Vision
To facilitate an umbrella of services for the SJS/TEN patient community in Canada
SJS Canada aims
To advance education by providing workshops, forums, and seminars about SJS/TEN to the public and medical professionals.
To promote health by providing people suffering from SJS/TEN as well as their families and caregivers with access to related counselling, support groups, and information programs
To provide support, advocacy, and education for the SJS/TEN patient community.
