​August 18 – SJS Awareness Day?

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August 18th is recognized globally as SJS Awareness Day—a day to honour the lives lost to SJS/TEN and to stand in solidarity with survivors, families, and caregivers. It serves as a powerful reminder of the importance of early recognition, informed healthcare decisions, and strong support networks.

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On this day, we come together to:

• Remember those who have passed away due to SJS/TEN

• Celebrate the strength and resilience of survivors

• Educate the public and healthcare professionals about prevention and early signs

• Advocate for safer drug practices and improved treatment protocols

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How You Can Get Involved:

• Join our annual virtual webinar – Featuring survivors, healthcare experts, and advocates (August 28, 2025 – details to come)

• Share your story – Help raise awareness through your lived experience

• Support our campaigns on social media with facts, resources, and survivor voices

• Participate in our Move/Walk/Run event – Coming mid to late summer

• Visit us at community events, such as our Canada Day booth in Brantford

• Become a member – Join our growing community and help us expand our reach and impact

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Together, We Are Stronger

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SJS Awareness Month and SJS Awareness Day are powerful reminders that every voice matters. Whether you're a survivor, a loved one, a healthcare provider, or an advocate, your participation helps bring visibility to this rare condition and ensures that no one affected by SJS/TEN stands alone.

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Let’s continue working together to save lives through awareness, early detection, and compassionate support.

To learn more or get involved, contact us at info@sjscanada.org or follow us on social media @SJSCANADA.