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August 18th

SJS Awareness Day

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Activities: Complete all checks for the day!

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  • We kindly ask you to post your photo or video as you engage in these activities with #sjscantstopme

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  • Follow us on social media to hear survivors share their stories with us

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  • Wear blue, the SJS official colour, and encourage others to do the same.

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  • Change your social media profile to blue.

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  • Be encouraged to tell someone about SJS/TEN throughout the day 

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  • Join our virtual/in-person SJS/TEN awareness Move-A-Thon

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  • Survivors can get together, within a virtual space, with a facilitator and share their experience and support each other.

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  • Please feel free to spread the word or distribute SJS awareness materials within the community

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When is Stevens-Johnson Syndrome(SJS) Awareness Day/Month?

SJS Awareness Month:

August

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SJS Awareness Day:

August 18th


The international Stevens-Johnson Syndrome and Toxic Epidermal Necrolysis (SJS/TEN) community has embraced August 18th as its formal awareness day after the SJS foundation received a formal proclamation from the United States government.

 

SJS Canada joins the global community to celebrate this day while striving to gain formal recognition for this day in Canada.

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Why do we celebrate SJS Awareness Day/Month?

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We celebrate SJS Awareness Day and Month with the goal of raising awareness and educating the public about Stevens-Johnson Syndrome and Toxic Epidermal Necrolysis. During August, we have a variety of events leading up to August 18th (SJS awareness day) through August 31st. Ultimately, we hope the medical community and the general public become more familiar with SJS/TEN, its early signs, and the life-altering symptoms that affect survivors.


Throughout August, the awareness activities include but are not limited to: 

  • Multiple social media blasts/infographics/infomercials each week

  • Community awareness virtual/in-person sessions 

  • We host a virtual town hall meeting and our guest panel includes medical experts, researchers, and scientists within the SJS/TEN field.

  • This town hall event offers public awareness, education, and research updates as well as addressing some common issues and concerns on the subject. There are also SJS/TEN patient representatives who lovingly share their stories to help bring and spread awareness of the illness. Other days during the month highlight different segments of the illness.


On August 18th, the following usually occurs:

  • Social media blast with informational facts about the illness. 

  • Survivors share their stories on social media

  • We encourage everyone to wear blue, the official colour of the SJS.

  • We motivate each other and tell someone about SJS/TEN throughout the day 

  • An organized virtual/in-person SJS/TEN awareness walkathon 

  • Survivors get together within a virtual space with a facilitator to share their experiences and support each other. The recording will later be uploaded to our website to support others.

  • Distribution of SJS awareness materials within the community.

  • During the month we highlight a variety of Special days that feature different segments of the long-term effects of the illness.

  • We host a hybrid MOVE-A-TON: to help raise awareness and raise funds to help fund SJS/TEN research:  This event gives supporters to opportunity to move their bodies in support of/recognition of those who can’t move as a result of SJS/TEN.​

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