Board of Directors
Co-Chair – Governance & Operations Lead
Dr. Karen Worthy
Dr. Karen Worthy is a Professor at the University of South Carolina College of Nursing. Dr. Worthy has a 28-year history in professional nursing and has been a nurse educator for 19 years. She received an ADN, BSN, MSN, MPH, a Graduate Certificate in Leadership Studies,...
Medical Advisors
Dr. Bruce Carleton
PharmD, FCP, FISPE
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Dr. Bruce Carleton has over 30 years of experience in clinical pharmacology and investigating the safety and effectiveness of drugs used in both children and adults. He is the founder and CEO...​
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Professor and Chair
Division of Translational Therapeutics, Department of Pediatrics
Faculty of Medicine
University of British Columbia
Director
Pharmaceutical Outcomes Programme
BC Children’s Hospital
Senior Clinician Scientist
BC Children’s Hospital Research Institute Vancouver
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Dr. Elizabeth J. Phillips
MD, FRCPC, FRACP, FIDSA, FAAAAI
Dr. Elizabeth Phillips is a physician-scientist clinically trained in infectious diseases, immunology, and clinical pharmacology who has established new clinical and research programs in drug hypersensitivity...
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Professor of Medicine, Dermatology, Pathology, Microbiology, and Immunology
John A. Oates Chair in Clinical Research
Director, Center for Drug Safety and Immunology
Director, Personalized Immunology, John A. Oates Institute for Experimental Therapeutics
Vanderbilt University Medical Center
Professor of Pharmacology
Vanderbilt University School of Medicine
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Coordinators
Francene Francis
Administrative Assistant to the President
Francene has served in this capacity since 2022. She has a personal stake in the organization as a close family member has persevered and survived the onslaught of the illnesses and still continues to live with the aftereffects.
Alongside the President, Francene is responsible for overseeing the daily operations of the organization and ensuring that the President's visions for SJS Canada are carried out to the best of our volunteer capacity.
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Larba Ouedraogo
Web Developer and Team Coordinator
I worked as a Senior Audiovisual Technician before moving to the USA, where I completed a Master's degree in Mass Media and Strategic Communications. I volunteered with different organisations, such as Education Without Borders (EwB).
At SJSC Canada, I manage the website development, lead the website team, ensure compliance, and improve user experience. I am using technology for better health outcomes.
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Jessica Chan
Bookkeeper Coordinator
Jessica joined SJS Canada as a bookkeeping coordinator back in October 2025. Her role with SJS Canada involves managing bookkeeping functions and preparing financial reports for the board in a timely manner. Jessica is a Chartered Professional Accountant and has 3+ years’ experience in public practice specializing in US tax and Canadian tax. She made the switch and went into industry a couple of years ago and is now working as Manager of Financial Reporting for the health authority on Vancouver Island. Jessica was born and raised in Toronto, but she met her husband and moved to the west coast to start a family and a new career. In her spare time, she loves practicing yoga and going for hikes with her family.
Jenna Mistry
Patient Support Coordinator
TBA
Mawish Masud​
Volunteer Coordinator
I serve as a Volunteer Coordinator with SJS Canada, where I recruit, onboard, and support volunteers to ensure meaningful and positive engagement. I maintain structured systems to track volunteer roles and hours, collaborate with program leads to align volunteer resources with organizational needs, and help organize appreciation initiatives that strengthen retention and morale.With over six years of experience in operations and quality within automotive and service environments, I bring expertise in ISO 9001 compliance, internal audits, vendor development, and process improvement. My background in documentation management and cross-functional coordination allows me to build efficient, well-organized systems that support both people and programs. I am committed to fostering strong community relationships while delivering structured and results-driven support.
DanaHufe
Marketing and Communications Coordinator
Dana is a passionate writer and dedicated teacher who has spent significant time living and working in Europe before making Toronto her home. She has extensive global experience in communications within the Rare Disease space, and has previously worked in content writing and design across nonprofit, education, and corporate spaces. Dana strongly believes in the power of communication in inciting change and raising awareness about critical healthcare issues. She is excited to use her skills to contribute to the SJS Canada team, and strives to improve her understanding of the challenges faced by those living with SJS/TEN.
In her current role, Dana is responsible for the social media presence, email communication, and outreach for the organization. Dana hopes to connect patients, families, and healthcare professionals, fostering a supportive network that facilitates education and advocacy.
Sarah Ahmed
Community Outreach Coordinator
TBA
