Francene has served in this capacity since 2022. She has a personal stake in the organization as a close family member has persevered and survived the onslaught of the illnesses and still continues to live with the aftereffects.

Alongside the President, Francene is responsible for overseeing the daily operations of the organization and ensuring that the President's visions for SJS Canada are carried out to the best of our volunteer capacity. 

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I worked as a Senior Audiovisual Technician before moving to the USA, where I completed a Master's degree in Mass Media and Strategic Communications. I volunteered with different organisations, such as Education Without Borders (EwB).

At SJSC Canada, I manage the website development, lead the website team, ensure compliance, and improve user experience. I am using technology for better health outcomes.

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Fey Chukwuelue serves as the Patient Support Coordinator at Stevens-Johnson Syndrome Canada. With an educational background in Nursing and Public Health, Fey is dedicated to connecting with survivors, providing compassionate guidance, and helping navigate health resources for patients and families affected by SJS/TEN. Fey is passionate about advancing patient advocacy, health education, and building a supportive community across Canada.

TBA

I serve as a Volunteer Coordinator with SJS Canada, where I recruit, onboard, and support volunteers to ensure meaningful and positive engagement. I maintain structured systems to track volunteer roles and hours, collaborate with program leads to align volunteer resources with organizational needs, and help organize appreciation initiatives that strengthen retention and morale.With over six years of experience in operations and quality within automotive and service environments, I bring expertise in ISO 9001 compliance, internal audits, vendor development, and process improvement. My background in documentation management and cross-functional coordination allows me to build efficient, well-organized systems that support both people and programs. I am committed to fostering strong community relationships while delivering structured and results-driven support.

Khushi is currently an Honours Biology student at York University with a strong interest in healthcare, community service, and nonprofit initiatives. She is passionate about community service/advocacy, and has experience supporting nonprofit organizations through education, and meaningful community engagement. She is proud to help advance SJS Canada's mission of supporting patients, and increasing awareness of SJS and TEN.

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As a Fundraising Coordinator at SJS Canada, Khushi supports the planning and coordination of fundraising initiatives, assists with donor outreach and event logistics, and helps develop resources that strengthen the organization's fundraising efforts. In her free time, Khushi enjoys spending time with her family and friends, and going on walks with her dog!

Jessica joined SJS Canada as a bookkeeping coordinator back in October 2025. Her role with SJS Canada involves managing bookkeeping functions and preparing financial reports for the board in a timely manner. Jessica is a Chartered Professional Accountant and has 3+ years’ experience in public practice specializing in US tax and Canadian tax. She made the switch and went into industry a couple of years ago and is now working as Manager of Financial Reporting for the health authority on Vancouver Island. Jessica was born and raised in Toronto, but she met her husband and moved to the west coast to start a family and a new career. In her spare time, she loves practicing yoga and going for hikes with her family.