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Affiliates

Our partnerships as affiliates with the Canadian Skin Patient Alliance (CSPA) and the International Alliance of Dermatology Patient Organizations (IADPO—also known as GlobalSkin) have afforded us the opportunity to collaborate and build relationships with multiple organizations that treat a variety of skin disorders.  

By doing so, we are able to expand the reach of the SJS/TEN patient community so they have access to added resources.  Our skin, the largest organ in our body is the first introduction of oneself to the world.  These organizations help to build SKIN confidence and define the skin you are in.

Registered member with the National Organization for Rare Disease (NORD) since 2023.

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Canadian Skin has some valuable information in support of SJS click here for more.​

 

The Canadian Skin Patient Alliance (CSPA) is a national non-profit organization dedicated to advocating, educating and supporting Canadians living with skin diseases, conditions and traumas. They serve as an umbrella organization for Canadian patient groups and organizations that deal with specific skin disorders.

 

By working together, they advocate for the needs of skin patients across the country and provide a broad range of education and support.

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The International Alliance of Dermatology Patient Organizations (IADPO – also known as GlobalSkin) is a unique global alliance, committed to improving the lives of skin patients worldwide.

 

We nurture relationships with members, partners and all involved in healthcare ─ building dialogue with decision-makers around the globe to promote patient-centered healthcare.

GlobalSkin works to empower its more than 167 patient organization members ─ located in 53 countries representing more than 60 disease areas ─ to reach more patients and provide them with greater support, education and advocacy.

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