Survivor's Stories

We would be honoured to share your experience as a beacon of support and unity.

Julie’s story

Meet Julie who miraculously survived SJS/TEN.

YC’s story

I was a completely healthy individual until I got the flu vaccine...

Jeremy’s story

I had a bacterial infection in 2005. After 13 days of taking antibiotics, I developed...

Kathleen’s story

My name is Kathleen, and I am from Washington, USA, just north of...

Anastasia’s Story

I was diagnosed with TEN in early 2016 when I was 28 years old. I was 5th grade...

Jane’s story

My name is Jane Grady and I’m an SJS/TEN survivor. I was prescribed a medication ...

Jennifer’s Story

My name is Jennifer Lane. I have just turned 48, and this is my SJS/Ten story. It all...

Bruce’s Story

Late February 2005, I developed symptoms of fever, headache, and...

Kim’s Story

The impact of Stevens Johnson Syndrome affects each victim differently depending on...

Dr. Karen's Story

Karen Worthy, Ph.D., MPH, RN, CNE, CNEcl
University of South Carolina, College of Nursing Professor...