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Stevens-Johnson Syndrome Canada (SJSC) is a registered, non-profit organization dedicated to spreading awareness about Stevens-Johnson Syndrome, the extremely rare life-threatening medical illness. 

Our founder and president Sonia W. Croasdaile, unfortunately was stricken with Stevens Johnson Syndrome and Toxic Epidermal Necrolysis (SJS/TEN) in 2011.


Her miraculous survival inspired her to create a well needed outlet to spread awareness about this life-threatening medical illness, that burn the body from inside out.


(Photo by Patient Voice)

Sonia’s Story on City TV

Sonia Whyte-Croasdaile video interview with Avery Hains

City TV Interview 2014

Shear Listening Podcast

Spotify | SLP S01E01 - Is SJS the Worst Disease You Might Get?

Listen now

Dr Shear.jpeg
Join the Fight Against the Disease That Burns the Body From the Inside Out.

What is Stevens-Johnson Syndrome  and Toxic Epidermal Necrolysis (SJS/TEN)?

Stevens-Johnson Syndrome  and Toxic Epidermal Necrolysis (SJS/TEN) represent different degrees of a severe, acute, life-threatening mucocutaneous reaction resulting mainly from drugs. Both are considered a medical emergency that requires hospitalization and management of patients is usually provided in intensive care units or burn centers. Recovery can take weeks to months, and there are numerous long-term effects. Medications are the major precipitating cause and no specific treatment modality has been proven effective.

By current convention, the following terminology is used: the term SJS is used when the disease involves less than 10 % of the total body surface area; and the term TEN is used when the disease involves more than 30% of the body surface area.

Coming Up Next

Save your spot to our next events.

  • SJS Canada February Town Hall Event
    SJS Canada February Town Hall Event
    Thu, Feb 29
    Virtual Event - Zoom
    Feb 29, 2024, 7:30 p.m. – 9:00 p.m. EST
    Virtual Event - Zoom
    Feb 29, 2024, 7:30 p.m. – 9:00 p.m. EST
    Virtual Event - Zoom
Advancing research improves lives.

Learn more about vital SJS/TEN research as scientists discover the next breakthrough.


SJS Canada creates fundraising events that provides opportunities for SJS/TEN survivors, supporters, family, friends and community members to be involved in.

Your donations will help support the SJS/TEN patient community, raise public awareness, and support the funding of research projects.

You will receive a tax receipt for any donation of $20 or more.
To be the leader in Canada providing support, advocacy and education for the SJS/TEN patient community.
In 2012, founded by Sonia Whyte-Croasdaile, a survivor of TEN, the goals of the organization are the following:

  • To advance education by providing workshops, forums and seminars  about SJS/TEN to the public and medical professionals.
  • Promote health by providing people suffering from SJS/TEN as well as their families and caregivers with access to related counselling, support groups and information programs.
  • To provide support, advocacy and education for SJS/TEN patient community.
We understand, how can we help?

Let us know how to get back to you.

Thanks for reaching out!

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