STEVENS-JOHNSON SYNDROME CANADA
Stevens-Johnson Syndrome Canada (SJSC) is a registered, non-profit organization dedicated to spreading awareness about Stevens-Johnson Syndrome, the extremely rare life-threatening medical illness.
Our founder and president Sonia W. Croasdaile, unfortunately was stricken with Stevens Johnson Syndrome and Toxic Epidermal Necrolysis (SJS/TEN) in 2011.
Her miraculous survival inspired her to create a well needed outlet to spread awareness about this life-threatening medical illness, that burn the body from inside out.
(Photo by Patient Voice)
Sonia’s Story on City TV
Sonia Whyte-Croasdaile video interview with Avery Hains
City TV Interview 2014
What is Stevens-Johnson Syndrome and Toxic Epidermal Necrolysis (SJS/TEN)?
Stevens-Johnson Syndrome and Toxic Epidermal Necrolysis (SJS/TEN) represent different degrees of a severe, acute, life-threatening mucocutaneous reaction resulting mainly from drugs. Both are considered a medical emergency that requires hospitalization and management of patients is usually provided in intensive care units or burn centers. Recovery can take weeks to months, and there are numerous long-term effects. Medications are the major precipitating cause and no specific treatment modality has been proven effective.
By current convention, the following terminology is used: the term SJS is used when the disease involves less than 10 % of the total body surface area; and the term TEN is used when the disease involves more than 30% of the body surface area.
To be the leader in Canada providing support, advocacy and education for the SJS/TEN patient community.
In 2012, founded by Sonia Whyte-Croasdaile, a survivor of TEN, the goals of the organization are the following:
To advance education by providing workshops, forums and seminars about SJS/TEN to the public and medical professionals.
Promote health by providing people suffering from SJS/TEN as well as their families and caregivers with access to related counselling, support groups and information programs.
To provide support, advocacy and education for SJS/TEN patient community.