Global SJS Awareness Month: August August – A Month of Awareness, Advocacy, and Action Every August, SJS Canada joins organizations and individuals around the world to recognize Global Stevens-Johnson Syndrome (SJS) Awareness Month. A time dedicated to shining a light on Stevens-Johnson Syndrome (SJS) and Toxic Epidermal Necrolysis (TEN). These rare but severe reactions, most often triggered by medications, can be life-threatening and leave survivors with long-term physical and emotional impacts. Why Awareness Matters Early recognition of symptoms is critical to improving outcomes. Increased awareness among the public and healthcare professionals can lead to faster diagnosis, better treatment, and fewer preventable cases. By educating others, we can help save lives and reduce suffering. Our Goals During Awareness Month Educate about the signs, risks, and long-term effects of SJS/TEN Empower survivors and families to share their stories and connect with others Advocate for safer prescribing practices and stronger patient protections Engage communities through events, campaigns, and social media outreach How You Can Get Involved Join our events – including our annual Virtual SJS/TEN Educational Webinar and Move/Walk/Run happening mid to late summer Share your story – Survivor voices bring powerful awareness and connection Spread the word on social media using our downloadable graphics and hashtags Attend our Canada Day booth at Lion’s Park in Brantford (July 1st) to kick off the conversation early Support our Membership Drive – Help us grow and sustain our work year-round Together, We Are Stronger SJS Awareness Month is not just about information—it’s about community, compassion, and action. Whether you're a survivor, caregiver, healthcare professional, or supporter, your voice SJS Awareness Month Activities | This is how you can join the fight. We have some activities during August that you can join to support us in our fight. Check them out.

Research Dr. O’Reilly and the research team at the University of Limerick are conducting a survey of Stevens-Johnson Syndrome and Toxic Epidermal Necrolysis survivors. T heir research involves two rounds of surveys aiming to developing a Quality of Life (QoL) outcome measure specific for SJS/TEN patients. Existing general QoL outcome measures do not capture the specific experiences of SJS/TEN survivors; this tool may help more clinicians assess SJS/TEN survivors’ quality of life and identify areas of improvement. How to find out more and participate If you would like to learn more about the study or are interested in participating, please contact Professor Pauline O’Reilly at the Department of Nursing and Midwifery, University of Limerick. You can reach her via email at Pauline.OReilly@ul.ie. Click here to access the complete Research Information Sheet by Health Research Board Know more about the research What is the study about? Survivors of Stevens-Johnson Syndrome (SJS) and Toxic Epidermal Necrolysis (TEN) face numerous psychological and physiological challenges that significantly affect their quality of life. Many experience difficulties in returning to work and maintaining relationships. A substantial number, approximately 50%, remain hesitant to take medications even five years after their discharge. Feedback from patients, family caregivers, and clinicians indicates that current general quality of life (QoL) measures do not adequately reflect the unique experiences of SJS/TEN survivors. To address this gap, our project aims to develop and test a specific QoL outcome measure tailored for individuals affected by SJS/TEN, which we have named QoLTEN. We have created a draft version of this measure and would like to invite you to participate in a two-round survey designed to evaluate how effectively QoLTEN captures your quality-of-life experiences. Your input will be invaluable in refining this tool to better serve the needs of SJS/TEN survivors. Who is on the research team? Who can participate? What does it involve? What are the benefits? What are the risks? How will data be protected? How are the results shared? STUDIES ON GENETICS A research titled: – STUDIES ON GENETICS conducted by: Dr. Bruce Carleton Chair, Division of Translational Therapeutics Faculty of Medicine University of British Columbia As per Dr. Carleton, the central theme of his research program, Pharmaceutical Outcomes and Policy Innovations (POPi), is the study of drug therapy with the goal of improving human health and quality of life. He is interested in developing models for evaluating drug effectiveness, medication use models designed to improve patient health, and effective surveillance systems to improve the safe use of medication. He also has an interest in the clinical management of patients who experience serious adverse drug reactions. You can learn more about Dr. Carleton’s research program by emailing him at the email address listed below. FOR DETAILS ABOUT THIS RESEARCH PROJECT: Please email: bcarleton@popi.ubc.ca Survivors and family members of Stevens-Johnson Syndrome & Toxic Epidermal Necrolysis are encouraged to get involved The survey is ready! Dear colleague, As anticipated in our previous email from the COSTEN Project, we are pleased to announce the official launch of Round 1. The participation link is provided at the end of this email. Web-based Delphi questionnaire logistics and timeline The Delphi survey will be conducted using the web-based Welphi platform and will take place in 2-4 rounds, depending on the results of the preceding rounds. The first-round survey is now open from March 5th 2026 until March 20th, 2026, and is expected to take approximately 15 minutes to complete. The questionnaire can be completed over multiple sessions. Should you exit the survey before completion, your responses will be saved automatically, and upon returning, you will be taken back to the point where you left off. All answers and comments will be treated anonymously. Information regarding the second round will be shared with participants in the coming weeks, following analysis of the first-round responses. When accessing the platform, you will be reminded of the objective of this consensus study and provided with clear instructions regarding your participation. Each invited participant will receive a personalized link; please do not share it with others. To participate, please click the following link: app2.welphi.com//Pages/RedirectPage.aspx?sygNY5/UkxN9rAbu09Imn/BG454JHJcpuBHA1luMdc4= For scientific and other questions, please contact us at CostenProject@gmail.com Should you have any technical questions, please contact the Welphi team at Support@welphi.com Thank you very much, Best regards, Prof. Saskia Oro, MD Prof. Roni P. Dodiuk-Gad, MD On behalf of the COSTEN Project

Testimonials I am now part of a group of survivors from many places who zoom and talk, email, and encourage and support each other on a regular basis. It is a valuable asset in my post SJS overlapping TEN day-to-day feel-good moments, a place to gather knowledge, ask questions, and listen to others. Peace and love. ✌️🌸 Jane G. I experienced Stevens-Johnson Syndrome (SJS) in March 2005. I discovered Sonia’s ‘SJS Canada Support Group’ in 2020. SJS is scary, and the long-term symptoms af fect victims diff erently. For me, it’s mostly been an ongoing difficulty with my eyes. Many victims experience SJS much more intensely. SJS Can is a place for survivors and/or guardians to be heard, ask questions, share experiences, and feel safe. It reminds us we’re not alone in this fight and that brighter days are ahead. I greatly appreciate the availability and consistency of Sonia’s group. I respect and am grateful for the work Sonia puts into moving the group and thus SJS awareness forward. Sonia is an example of professionalism and commitment and I really appreciate the community and fellowship her group offers. Jeremy F. My name is YC and I experienced Steven's Johnson's Syndrome (SJS) in November 2019. I discovered Sonia’s ‘SJS Canada Support group in 2021. When I was first diagnosed with SJS, I thought it was something short term and that I would be able to fully recover and resume my life as normally as before. I soon realized that I may be dealing with long term/permanent issues. SJS Canada support group has helped me cope with my diagnosis and have provided valuable information pertaining to treatment and advice. It has been wonderful getting to know the members of the group and hearing their stories. Sonia’s efforts in organizing the meetings and finding guest speakers are greatly appreciated. YC In 2014 at the age of 52 I was hospitalized due to an allergic reaction to a medication which caused my immune system to go out of control and ultimately diagnosed as Stevens Johnson Syndrome. It was so bad that I was not expected to survive but with excellent medical intervention and a brilliant ophthalmologist and surgeries, 7 years later I still have my vision although the trauma of SJS will always be there. I'm grateful for all the support I have received from the SJS TENS Grp of Canada and the information they continually provide. It's a very rare disease and can be life threatening but I am proof that it can be beaten. Paul RG I have learned so much about the SJSCA Support group. I was very hurt learning about the ordeal the founder, my friend and former classmates Sonia Crossdale went through. Mrs Crossdale a strong woman of God be bless and continue the fight in Jesus's name. Marlene A. Hi Sonia, one thing I have learned through this journey is that Angels are all around us. You may not see them but they show themselves when needed. Thank you for all you have done. Dennis P.

Circle of Hope Join Our Community of Compassionate Monthly Donors Every day, survivors of Stevens-Johnson Syndrome (SJS) and Toxic Epidermal Necrolysis (TEN) face unimaginable challenges, from the physical scars to the emotional toll of recovery. At SJS Canada, we walk alongside survivors and their families, offering advocacy, awareness, and support when it’s needed most. The Circle of Hope brings together caring individuals like you, people who believe no survivor should face this journey alone. Purpose & Vision The Circle of Hope is SJS Canada’s monthly donor initiative, created to build a strong, compassionate community of supporters who make ongoing impact possible. Your monthly gift helps us: Sustain vital survivor support programs: ensuring individuals and families have a lifeline through their recovery. Advance awareness and advocacy efforts: helping to prevent misdiagnosis and improve patient care. Support education and research: promoting better understanding and early recognition of SJS/TEN. Maintain organizational stability: allowing us to respond quickly when families reach out for help. Why Give Monthly? When you give monthly, you’re not just making a donation, you’re joining a movement of hope, healing, and change. Consistency matters: Your steady support means we can serve survivors every month, not just when one-time donations come in. Impact grows: Even small gifts — $5, $10, $20, or more add up to life-changing support throughout the year. You belong: As part of our Circle of Hope, you’ll receive updates and stories showing how your generosity makes a real difference. Together, we can create a future where every SJS/TEN survivor feels seen, supported, and empowered. Give Monthly to Circle of Hope What Your Monthly Gift Can Do Your monthly contribution, no matter the size, directly fuels SJS Canada’s programs and outreach: $5/month – Helps provide printed resources and survivor guides to newly diagnosed individuals and their families. $10/month – Supports outreach and education initiatives to raise awareness among healthcare professionals and the public. $20/month – Contributes to survivor peer support programs, ensuring no one faces recovery alone. $50/month – Helps fund advocacy and policy efforts to improve patient care and systemic awareness of SJS/TEN. $100/month and above – Strengthens the long-term sustainability of SJS Canada’s national programs and emergency response initiatives. Every contribution builds a stronger, more compassionate network of care and awareness across Canada. Join the Circle of Hope Today Your commitment gives hope that lasts all year long. Click below to become a Monthly Donor and make your impact today. Donate Now Let’s Work Together Get in touch so we can start working together. First Name Last Name Email Message Send Thanks for submitting!

Programs and Services Survivor's Stories Here you'll find amazing stories from people. Read More Support Group We are here to help you. Send us a message. Read More Educational Want to learn more about SJS/TEN disease? Read More Volunteer Your help is greatly appreciated. Be part of our group. Read More How Can We Help We Care We care for supporters and SJS/TEN survivors on the recovery journey. Stay together The group is developed to join together those of us who are dealing with similar challenging circumstances – the long-term effects of SJS/TEN. Support Groups Through the sharing of our experiences, we’re able to offer support, encouragement, comfort to each other, and receive the same in return. Shared Experiences The SJS/TEN recovery journey can be very challenging, therefore one of the best medicines can often be the voice of people who have walked in your shoes. Medical Specialists Our monthly meetings provide the opportunity to have personal conversations with expert medical specialists in the SJS/TEN field. Together we can do better We are Stronger Together in the fight against SJS/TEN. #SJSCANTSTOPME SJS Awareness Month Read more... SJS Information Poster Download Poster Find a Doctor Read more... SJS Facts Sheet Download Sheet

What's SJS? What is Stevens-Johnson Syndrome (SJS) and Toxic Epidermal Necrolysis (TEN) SJS is a rare, severe skin condition brought on by an adverse reaction to a medication. Countless drugs can precipitate SJS, but the most common medications include non-steroidal anti-inflammatory drugs (e.g. ibuprofen), antibiotics (e.g. penicillins), anticonvulsants (e.g. phenytoin), and allopurinol. SJS can affect anyone taking medications but typically targets those under the age of 30. SJS starts with flu-like symptoms and is followed by a painful rash that spreads over the body, blisters, and peels. SJS and TEN are differentiated by the proportion affecting the entire body. When less than 10% of the entire body is involved, it is recognized as SJS; over 30% is called TEN. Without an early diagnosis, SJS/TEN can lead to systemic bacterial infections, pneumonia, multiple system organ failure and death. The risk of death for SJS is approximately 1-5%, and for TEN 25%-35%. However, survivors of SJS/TEN have life-long complications affecting their eyes, hair, genitourinary tract, and more. While there are no definitive documented statistics on the effects of SJS/TEN within the Canadian population, there are over 50 known cases nationwide, including children, teens, adults and elders. The cases include both males and females of a variety of races. Stevens-Johnson Syndrome (SJS) and Toxic Epidermal Necrolysis (TEN) are severe skin reactions often triggered by medications or infections. They involve widespread skin detachment and mucous membrane involvement, leading to significant morbidity and mortality. SJS and TEN represent different degrees of severe, acute, life-threatening mucocutaneous reactions mainly resulting from drugs. SJS/TEN causes the skin to become red and purple, tender, and peel away from the body. These diseases affect not only the skin on the external surface of the body but also the moist lining of the mouth, nose, eyes, genitals, and other body parts. Both conditions are considered a medical emergency that requires hospitalization and patient management is usually provided in intensive care units or burn centers. Recovery can take weeks to months, and there are numerous long-term sequelae. Medications are the major precipitating cause and some drugs have a greater genetic risk factor. Newer treatments include safe anti-inflammatory biological injections like Etanercept. WOMEN are nearly 1.5x more likely to experience SJS/TEN than men. SJS/TEN AFFECTS 1-7 cases per million patients. Additional Information about SJS / TEN: Definition of syndrome A life threatening disease with blistering of the skin and eroding of mucous membranes (eyes, mouth, genitals). Cause 80% are caused by an identifiable drug, 20% are unknown. Drugs are varied but anti-seizure medications, sulfonamides and allopurinol are top of the list. Qualifiers of the syndrome The severity of SJS to TEN depends on the amount of skin involved (can be 100%) and all patients with SJS/TEN will need to be treated in an Intensive Care. The term SJS is used when the blistering of the skin involves less than 10% of the total body surface area. The term TEN is used when the blistering involves more than 30% of the body surface area. The term SJS/TEN overlap is used when there is blistering that covers between 10 to 30% of the body surface area. Impact on patients' quality of life Depending on the stage many patients will die. For the 80% who survive there are life-long medical, physical, and psychological traumas that persist. Treatment Early treatment is life-saving. Different stages might need different treatments. Intensive Care Burn Centers are optimal. Therapies include immune modulators like corticosteroids, anti-TNF (e.g., Etanercept) biologicals, and amnion for eye involvement. Prevalence rates in Canada Perhaps 1 to 2 per million Canadians will be afflicted per year. Some Facts The condition is rare so it might be missed. Delay is a risk for a poor outcome. There are genetic tests for some patients that might help reduce the risk. Stevens-Johnson Syndrome and Toxic Epidermal Necrolysis are two rare, acute, but life-threatening skin conditions. Both conditions are usually allergic reactions to medication, however; in some cases, the causes remain unknown. Approximately 1-7 people per million are affected globally each year Here is a summary of their long-term effects: 1. Skin and Mucous Membranes: Scarring: Severe scarring and pigmentation changes can occur, especially in areas where the skin has detached. Dryness and Sensitivity: Chronic dryness and sensitivity of the skin can persist, requiring ongoing dermatological care. Nail Abnormalities: Permanent nail loss or deformities may occur due to damage to the nail beds. 2. Ocular Complications: Chronic Dry Eye: Damage to the tear ducts can lead to persistent dry eye syndrome. Vision Impairment: Scarring of the cornea, conjunctiva, or eyelids can result in vision loss or blindness. Photophobia: Sensitivity to light may persist due to ocular surface damage. 3. Respiratory System: Chronic Respiratory Issues: Damage to the respiratory mucosa can lead to chronic cough, bronchitis, or even pulmonary fibrosis. Airway Obstruction: Severe cases may lead to long-term airway obstruction requiring medical intervention. 4. Gastrointestinal Tract: Esophageal Strictures: Scarring in the esophagus can lead to strictures, causing swallowing difficulties. Malabsorption: Damage to the gastrointestinal lining may result in long-term absorption issues. 5. Genital and Urinary Tract: Strictures and Scarring: Scarring can cause strictures in the urinary tract and genital area, leading to difficulties in urination and sexual dysfunction. 6. Psychological Impact: Post-Traumatic Stress Disorder (PTSD): The traumatic experience and prolonged recovery can lead to PTSD, depression, and anxiety. Body Image Issues: Visible scarring and disfigurement can cause significant distress and impact self-esteem. 7. Neurological Complications: Peripheral Neuropathy: Some patients may experience nerve damage leading to chronic pain or sensory issues. 8. Immune System: Long-term Immunological Changes: SJS/TEN can lead to changes in immune system function, potentially increasing susceptibility to infections or autoimmune disorders. These long-term effects necessitate a multidisciplinary approach to care, involving dermatologists, ophthalmologists, pulmonologists, gastroenterologists, urologists, psychologists, and other specialists to manage the diverse and complex sequelae of these conditions. Regular follow-up and comprehensive care plans are essential for improving the quality of life for affected individuals.

February is Rare Disease & Black History Month. February 28th. is Rare Disease Day. February – A Rare Disease Month, Awareness, Advocacy, and Action Read more February – Black History Month Read more Together, We Are Stronger ! SJS Rare Disease & Black History Month are not just about information—it’s about community, compassion, and action. Whether you're a survivor, caregiver, healthcare professional, or supporter, your voice. Let's build a strong community and healthy community together, no matter the color of your skin. SJS promotes equity for everyone.

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Meet The Team Founder/President Founder & President Sonia Whyte-Croasdaile Sonia Whyte-Croasdaile RPN, RSW is a wife, mother, nurse, Registered Social Worker, a trained Relaxation/Life Coach, and the Founder and President of Stevens-Johnson Syndrome Canada. She is experienced in ... Read More Board of Directors Co-Chair Strategic & External Lead Sanjay Kumar Sanjay Kumar is a Sariel Entpreneure. His expertise includes Digital Marketing, IT Consulting Services, and Managing cross-functional teams. Sanjay helps enterprises ... Read More Board Member | Medical Advisor Dr. Bruce Carleton Dr. Bruce Carleton has over 30 years of experience in clinical pharmacology and investigating the safety and effectiveness of drugs used in both children and adults. He is the founder and CEO... Read More Board Member Sonia Bromfield-Cornish Sonia Bromfield-Cornish has been a practicing pharmacist for over 25 years, working across various sectors of the industry, including Community Pharmacy, Hospital Pharmacy, Compounding ... Read More Member at Large/Secretary Coleen Lambert Coleen Lambert is a licenced Financial Broker and Coach. Prior to building her own Financial Services and Financial Coaching company in 2020, Coleen worked as a Legal Professional for more than 16 years in various areas... Read More Board Member Phatay Waraich Phatay is a Vendor Manager with TD Bank within the technology team. He has had various roles within the financial industry from procurement and third party risk management to... Read More Co-Chair – Governance & Operations Lead Dr. Karen Worthy Dr. Karen Worthy is a Professor at the University of South Carolina College of Nursing. Dr. Worthy has a 28-year history in professional nursing and has been a nurse educator for 19 years. She received an ADN, BSN, MSN, MPH, a Graduate Certificate in Leadership Studies,... Read More Patient Representative Jeremy Falk My name is Jeremy Falk and I live in Los Angeles. In 2005 I had a bacteria staph infection. After taking two weeks of a 21-day supply of Bactrim (a Sulfa-based antibiotic), my eyes and throat started to feel inflamed and irritated. I went to ... Read More Board Member Dr. Michele Ramien Dr. Ramien is a hospital-based academic dermatologist at the Alberta Children’s Hospital who is board-certified in both Canada and the United States. A first-generation... Read More Medical Advisors Dr. Bruce Carleton PharmD, FCP, FISPE Dr. Bruce Carleton has over 30 years of experience in clinical pharmacology and investigating the safety and effectiveness of drugs used in both children and adults. He is the founder and CEO... Professor and Chair Division of Translational Therapeutics, Department of Pediatrics Faculty of Medicine University of British Columbia Director Pharmaceutical Outcomes Programme BC Children’s Hospital Senior Clinician Scientist BC Children’s Hospital Research Institute Vancouver Dr. Elizabeth J. Phillips MD, FRCPC, FRACP, FIDSA, FAAAAI Dr. Elizabeth Phillips is a physician-scientist clinically trained in infectious diseases, immunology, and clinical pharmacology who has established new clinical and research programs in drug hypersensitivity... Professor of Medicine, Dermatology, Pathology, Microbiology, and Immunology John A. Oates Chair in Clinical Research Director, Center for Drug Safety and Immunology Director, Personalized Immunology, John A. Oates Institute for Experimental Therapeutics Vanderbilt University Medical Center Professor of Pharmacology Vanderbilt University School of Medicine Coordinators Francene Francis Administrative Assistant to the President Francene has served in this capacity since 2022. She has a personal stake in the organization as a close family member has persevered and survived the onslaught of the illnesses and still continues to live with the aftereffects. Alongside the President, Francene is responsible for overseeing the daily operations of the organization and ensuring that the President's visions for SJS Canada are carried out to the best of our volunteer capacity. Larba Ouedraogo Web Developer and Team Coordinator I worked as a Senior Audiovisual Technician before moving to the USA, where I completed a Master's degree in Mass Media and Strategic Communications. I volunteered with different organisations, such as Education Without Borders (EwB). At SJSC Canada, I manage the website development, lead the website team, ensure compliance, and improve user experience. I am using technology for better health outcomes. Fey Chukwuelue Patient Support Coordinator Fey Chukwuelue serves as the Patient Support Coordinator at Stevens-Johnson Syndrome Canada. With an educational background in Nursing and Public Health, Fey is dedicated to connecting with survivors, providing compassionate guidance, and helping navigate health resources for patients and families affected by SJS/TEN. Fey is passionate about advancing patient advocacy, health education, and building a supportive community across Canada. Jenna Mistry Patient Support Coordinator TBA Mawish Masud Volunteer Coordinator I serve as a Volunteer Coordinator with SJS Canada, where I recruit, onboard, and support volunteers to ensure meaningful and positive engagement. I maintain structured systems to track volunteer roles and hours, collaborate with program leads to align volunteer resources with organizational needs, and help organize appreciation initiatives that strengthen retention and morale.With over six years of experience in operations and quality within automotive and service environments, I bring expertise in ISO 9001 compliance, internal audits, vendor development, and process improvement. My background in documentation management and cross-functional coordination allows me to build efficient, well-organized systems that support both people and programs. I am committed to fostering strong community relationships while delivering structured and results-driven support. Khushi Sharma Fundraising Coordinator Khushi is currently an Honours Biology student at York University with a strong interest in healthcare, community service, and nonprofit initiatives. She is passionate about community service/advocacy, and has experience supporting nonprofit organizations through education, and meaningful community engagement. She is proud to help advance SJS Canada's mission of supporting patients, and increasing awareness of SJS and TEN. As a Fundraising Coordinator at SJS Canada, Khushi supports the planning and coordination of fundraising initiatives, assists with donor outreach and event logistics, and helps develop resources that strengthen the organization's fundraising efforts. In her free time, Khushi enjoys spending time with her family and friends, and going on walks with her dog! Jessica Chan Bookkeeper Coordinator Jessica joined SJS Canada as a bookkeeping coordinator back in October 2025. Her role with SJS Canada involves managing bookkeeping functions and preparing financial reports for the board in a timely manner. Jessica is a Chartered Professional Accountant and has 3+ years’ experience in public practice specializing in US tax and Canadian tax. She made the switch and went into industry a couple of years ago and is now working as Manager of Financial Reporting for the health authority on Vancouver Island. Jessica was born and raised in Toronto, but she met her husband and moved to the west coast to start a family and a new career. In her spare time, she loves practicing yoga and going for hikes with her family. Advisory Committee Karen Worthy PhD, MPH, RN, CNE, CNEcl Dr. Karen Worthy is a Professor at the University of South Carolina College of Nursing. Dr. Worthy has a 28-year history in professional nursing and has been a nurse educator for 19 years. She received... Read More Vincent Cornish Vincent Cornish, FICB. Vincent is a “Fellow of the Institute of Canadian Bankers”. He obtained his FICB designation through extensive studies at: York University, TMU (Toronto Metropolitan University – formally Ryerson University)... Read More Lorna Baker Lorna has been a Registered Nurse since 1996 and served as a Community Health Nurse from 1997 to 2010. Following this, she held the position of Certified Diabetes Educator at Unison Health and Community Services from... Read More

Community Organization Partner with SJS Canada to Raise Awareness of SJS/TEN Great News!!! SJS Canada is available to provide educational and awareness sessions to community organizations, healthcare-related groups, schools, workplaces, advocacy groups, and nonprofits seeking to better understand Stevens-Johnson Syndrome (SJS) and Toxic Epidermal Necrolysis (TEN). Read More Here To request a session, please complete the booking request form below Organization Information Organization Name* Contact person (First & Last name)* Title / Role* Phone Number Email address* Sessions Details Preferred Date and Time* Month Month Day Year Time : Hours Minutes AM Type of Session Requested* Virtual In-Person Fee Preference* Fee-for-Service Session Complimentary Session with Expected Donation Session Focus (check all that apply)* General SJS/TEN Awareness Early Signs & Recognition Survivor Experience & Long-Term Impact Caregiver & Family Education Other (please specify) Audience type* Community members Students Stall / Volunteers Mixed Audience Estimated Audience Size Additional Information Consent* I understand that submitting this form does not guarantee availability and that SJS Canada will follow up to confirm details. Submit

Active Campaigns SJS Canada Virtual “Move-a-Thon” Fundraiser 2024 Register Here Join the SJS Move-a-Thon 2024 Fundraiser: Move for Those Who Can't From August 16-19, we invite you to be a part of something truly meaningful. Across Canada and the United States, people will be walking, running, or biking to support survivors of Stevens-Johnson Syndrome (SJS) and Toxic Epidermal Necrolysis (TEN). These rare, but devastating skin conditions change lives forever. Together, we can help them on their journey to recovery. Move for Those Who Can't Imagine the unimaginable pain of your skin burning from the inside out. This is the reality for those suffering from SJS/TEN. Many survivors are left with lifelong consequences that make it difficult or impossible to move freely. By participating in the SJS Move-a-Thon, you are not just moving your body; you are moving hearts and minds towards a cause that needs your support. Why Participate? Your participation in the Move-a-Thon sends a powerful message of solidarity and hope to survivors of SJS/TEN. Every step you take, every mile you bike, directly contributes to providing survivors with essential resources such as supportive counseling, educational sessions, and genetic testing through partnerships with health professionals. Your efforts help to rebuild lives and restore hope. Join us in this journey of compassion and action. Let’s come together to make a tangible difference. Your support will provide survivors with the care and support they desperately need, showing them they are not alone. How You Can Help: Participate: Walk, run, step, bike or move from August 16-19. Donate: Make a secure donation and help us reach our goal (campaign ends Sept, 2024) Spread the Word: Follow us on social media for updates and share our cause with your community. Together, we can bring awareness to SJS/TEN, support survivors, and make a real difference. Let’s move for those who can't. Join the SJS Move-a-Thon and be a part of a movement that changes lives. WE THANK YOU IN ADVANCE FOR YOUR SUPPORT. Join us in the fight against the disease that burns the body from the inside out because TOGETHER, WE ARE STRONGER . Contact Us Help us on this fight! Donate Now

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