Search Results

Support Group Most often when an individual is trying to cope through challenging times, family members and friends may sympathize, but they don’t always know what to say or the best ways to help. Reasons to join our SJS/TEN Support Group: We care for supporters and SJS/TEN survivors on the recovery journey. The group was developed to connect those of us who are dealing with similar challenging circumstances—the long-term effects of SJS/TEN. Through sharing our experiences, we can offer support, encouragement, and comfort to each other and receive the same in return. The SJS/TEN recovery journey can be very challenging. Therefore, one of the best medicines is often the voice of people who have been in your shoes. Our monthly meetings allow personal conversations with expert medical specialists in the SJS/TEN field. Our Support Group is a safe and nurturing space where individuals come together to share experiences, encouragement, and foster personal growth. Our mission is to empower each member their journey to better health through connection, understanding, and shared resources. Join us as we support one another in achieving our wellness goals and building a healthier future together. Read more about SJS treatment info@sjscanada.org Name Email Subject Your message Send Thanks for submitting!

Circle of Hope Join Our Community of Compassionate Monthly Donors Every day, survivors of Stevens-Johnson Syndrome (SJS) and Toxic Epidermal Necrolysis (TEN) face unimaginable challenges, from the physical scars to the emotional toll of recovery. At SJS Canada, we walk alongside survivors and their families, offering advocacy, awareness, and support when it’s needed most. The Circle of Hope brings together caring individuals like you, people who believe no survivor should face this journey alone. Purpose & Vision The Circle of Hope is SJS Canada’s monthly donor initiative, created to build a strong, compassionate community of supporters who make ongoing impact possible. Your monthly gift helps us: Sustain vital survivor support programs: ensuring individuals and families have a lifeline through their recovery. Advance awareness and advocacy efforts: helping to prevent misdiagnosis and improve patient care. Support education and research: promoting better understanding and early recognition of SJS/TEN. Maintain organizational stability: allowing us to respond quickly when families reach out for help. Why Give Monthly? When you give monthly, you’re not just making a donation, you’re joining a movement of hope, healing, and change. Consistency matters: Your steady support means we can serve survivors every month, not just when one-time donations come in. Impact grows: Even small gifts — $5, $10, $20, or more add up to life-changing support throughout the year. You belong: As part of our Circle of Hope, you’ll receive updates and stories showing how your generosity makes a real difference. Together, we can create a future where every SJS/TEN survivor feels seen, supported, and empowered. Give Monthly to Circle of Hope What Your Monthly Gift Can Do Your monthly contribution, no matter the size, directly fuels SJS Canada’s programs and outreach: $5/month – Helps provide printed resources and survivor guides to newly diagnosed individuals and their families. $10/month – Supports outreach and education initiatives to raise awareness among healthcare professionals and the public. $20/month – Contributes to survivor peer support programs, ensuring no one faces recovery alone. $50/month – Helps fund advocacy and policy efforts to improve patient care and systemic awareness of SJS/TEN. $100/month and above – Strengthens the long-term sustainability of SJS Canada’s national programs and emergency response initiatives. Every contribution builds a stronger, more compassionate network of care and awareness across Canada. Join the Circle of Hope Today Your commitment gives hope that lasts all year long. Click below to become a Monthly Donor and make your impact today. Donate Now Let’s Work Together Get in touch so we can start working together. First Name Last Name Email Message Send Thanks for submitting!

Ways to Donate Thank you for your support! Your donation will greatly assist us . During the past few years, the pandemic impacted some of our programs, however, we were able to pivot to online and virtual meeting spaces! This has given rise to a series of Town Hall meetings featuring guest speakers and medical professionals, SJS/TEN conferences, public speaking engagements, and other virtual events, including our annual SJS virtual fundraising concerts! Our monthly survivors' support group meets online and co-hosts counselling workshops. Over the next 5 years, we are aiming to expand on these services and incorporate new ones to further the support, assistance, and education of Stevens-Johnson Syndrome and Toxic Epidermal Necrolysis. No one should have to journey through this alone; we are stronger together! Your donations will help us to continue the important work of supporting survivors and caregivers, as well as to promote awareness and education of these rare skin diseases. CanadaHelps CanadaHelps accepts donations on behalf of SJS Canada. You can give online from anywhere in Canada, and your contribution will go directly toward supporting SJS Canada’s mission. CanadaHelps handles all the details — from secure donation processing to tax‑receipting — so you don’t have to. Once your donation is processed, you’ll receive a tax receipt via email, helping you maximize your tax credits while making a meaningful impact. Donate on CanadaHelps E-Transfer You can now support SJS Canada directly by sending an Interac e-Transfer from your bank account. It's a quick, secure, and cost-effective way to give. 100% of your donation goes to SJS Canada — with no processing fees — helping to maximize the impact of your gift. To donate via e-Transfer, simply: Send your donation to: donations@sjscanada.org In the message or notes section, include your name and email address, so we can be in contact with you. Your generous contribution helps support the ongoing work of SJS Canada — thank you for your support! Donate a Car Canada accepts vehicle donations for SJS Canada. Free towing is provided in most areas across Canada, or you can drop off your vehicle to maximize your donation. When you donate your car, truck, RV, boat, or motorcycle to SJS Canada, it will either be recycled or re-sold (depending on its condition, age and location). Donate a Car Canada will look after all the details to make it easy for SJS Canada to benefit. You will receive a tax receipt after your donation has been processed! Car Donation: SJS Canada is partnering with Donate a Car Canada to accept your car donation! You will be provided free towing, or you can drop off your vehicle to maximize your donation. When you donate your car, truck, RV, boat, or motorcycle to SJS Canada through Donate A Car Canada, it will either be recycled or re-sold (depending on its condition, age and location). Donate a Car Canada will look after all the details to make it easy for SJS Canada to benefit. You will receive a tax receipt after your car donation has been processed! Vehicle Donation: SJS Canada is partnered with Donate a Car Canada to accept your vehicle donation! You will be provided free towing, or you can drop off your vehicle to maximize your donation. When you donate your car, truck, RV, boat, or motorcycle to SJS Canada through Donate A Car Canada, it will either be recycled or re-sold (depending on its condition, age and location). Donate a Car Canada will look after all the details to make it easy for SJS Canada to benefit. You will receive a tax receipt after your vehicle donation has been processed! Junk Car: Your junk car can help SJS Canada! We have partnered with Donate a Car Canada to accept your car donation. You will be provided free towing, or you can drop off your vehicle to maximize your donation. When you donate your car, truck, RV, boat, or motorcycle to SJS Canada through Donate A Car Canada, it will either be recycled or re-sold (depending on its condition, age and location). Your vehicle may not be a junk car, and they can help with that, too! Donate a Car Canada will look after all the details to make it easy for SJS Canada to benefit. You will receive a tax receipt after your vehicle donation has been processed! Car Removal: Looking for simple and free car removal? SJS Canada is partnering with Donate a Car Canada to accept your car donation! You will be provided free towing, or you can drop off your vehicle to maximize your donation. When you donate your car, truck, RV, boat, or motorcycle to SJS Canada through Donate A Car Canada, it will either be recycled or sold at auction (depending on its condition, age and location). Donate a Car Canada will look after all the details, from car removal to the disbursal of your gift, making it easy for you and SJS Canada to benefit. You will receive a tax receipt after your vehicle donation has been processed! Donate a Car Donate a Car Canada accepts Vehicle Donations for SJS Canada. Donate Your Car Here

Stevens -Johnson Syndrome Canada. SJS Support group. Learn about the disease that burns the body from the inside out. Promoting health by providing people suffering from SJS/TEN as well as their families and care givers with access to related counselling, support groups and information programs. Welcome to Stevens-Johnson Syndrome Canada Providing support for survivors, family, friends, and caregivers in the SJS/TEN community Our Mission Our Goal, Vision & Commitment Our Events Register & Help Make Change Get Involved Volunteer, Participate, or Donate Upcoming Events Multiple Dates SJSC Support Group Wed, Feb 18 https://us02web.zoom.us/j/82137370516?pwd=W More info Save spot Join the Circle of Hope Give Monthly. Create Lasting Impact. Every month, your generosity helps SJS Canada support survivors of Stevens-Johnson Syndrome (SJS) and Toxic Epidermal Necrolysis (TEN) through advocacy, awareness, and education. By joining the Circle of Hope, you become part of a compassionate community that ensures no survivor faces their journey alone. Whether you give $5, $10, $20, or more, your steady support provides strength, stability, and hope all year long. Join today and make your impact last. Become a Monthly Donor Read More Donate Monthly Subscribe to Our Newsletter First Name Last name Email Sign Up At SJS Canada, we are committed to promoting health by providing those affected by SJS/TEN, as well as their families and caregivers, with access to counseling, support groups, and information programs. Read About the Center Jane G. I am now a part of a group of survivors from many places who zoom and talk, email, and encourage and support each other on a regular basis. It is a valuable asset in my post SJS overlapping TEN day to day feel good moments, a place to gather knowledge, ask questions and listen to others. Peace and love. ✌️🌸 Testimonials See all Donate Today Donate to Make a Difference. Your donation is crucial to our mission of supporting patients and their fa milies who are affected by SJS/TEN. Donate Now

What's SJS? What is Stevens-Johnson Syndrome (SJS) and Toxic Epidermal Necrolysis (TEN) SJS is a rare, severe skin condition brought on by an adverse reaction to a medication. Countless drugs can precipitate SJS, but the most common medications include non-steroidal anti-inflammatory drugs (e.g. ibuprofen), antibiotics (e.g. penicillins), anticonvulsants (e.g. phenytoin), and allopurinol. SJS can affect anyone taking medications but typically targets those under the age of 30. SJS starts with flu-like symptoms and is followed by a painful rash that spreads over the body, blisters, and peels. SJS and TEN are differentiated by the proportion affecting the entire body. When less than 10% of the entire body is involved, it is recognized as SJS; over 30% is called TEN. Without an early diagnosis, SJS/TEN can lead to systemic bacterial infections, pneumonia, multiple system organ failure and death. The risk of death for SJS is approximately 1-5%, and for TEN 25%-35%. However, survivors of SJS/TEN have life-long complications affecting their eyes, hair, genitourinary tract, and more. While there are no definitive documented statistics on the effects of SJS/TEN within the Canadian population, there are over 50 known cases nationwide, including children, teens, adults and elders. The cases include both males and females of a variety of races. Stevens-Johnson Syndrome (SJS) and Toxic Epidermal Necrolysis (TEN) are severe skin reactions often triggered by medications or infections. They involve widespread skin detachment and mucous membrane involvement, leading to significant morbidity and mortality. SJS and TEN represent different degrees of severe, acute, life-threatening mucocutaneous reactions mainly resulting from drugs. SJS/TEN causes the skin to become red and purple, tender, and peel away from the body. These diseases affect not only the skin on the external surface of the body but also the moist lining of the mouth, nose, eyes, genitals, and other body parts. Both conditions are considered a medical emergency that requires hospitalization and patient management is usually provided in intensive care units or burn centers. Recovery can take weeks to months, and there are numerous long-term sequelae. Medications are the major precipitating cause and some drugs have a greater genetic risk factor. Newer treatments include safe anti-inflammatory biological injections like Etanercept. WOMEN are nearly 1.5x more likely to experience SJS/TEN than men. SJS/TEN AFFECTS 1-7 cases per million patients. Additional Information about SJS / TEN: Definition of syndrome A life threatening disease with blistering of the skin and eroding of mucous membranes (eyes, mouth, genitals). Cause 80% are caused by an identifiable drug, 20% are unknown. Drugs are varied but anti-seizure medications, sulfonamides and allopurinol are top of the list. Qualifiers of the syndrome The severity of SJS to TEN depends on the amount of skin involved (can be 100%) and all patients with SJS/TEN will need to be treated in an Intensive Care. The term SJS is used when the blistering of the skin involves less than 10% of the total body surface area. The term TEN is used when the blistering involves more than 30% of the body surface area. The term SJS/TEN overlap is used when there is blistering that covers between 10 to 30% of the body surface area. Impact on patients' quality of life Depending on the stage many patients will die. For the 80% who survive there are life-long medical, physical, and psychological traumas that persist. Treatment Early treatment is life-saving. Different stages might need different treatments. Intensive Care Burn Centers are optimal. Therapies include immune modulators like corticosteroids, anti-TNF (e.g., Etanercept) biologicals, and amnion for eye involvement. Prevalence rates in Canada Perhaps 1 to 2 per million Canadians will be afflicted per year. Some Facts The condition is rare so it might be missed. Delay is a risk for a poor outcome. There are genetic tests for some patients that might help reduce the risk. Stevens-Johnson Syndrome and Toxic Epidermal Necrolysis are two rare, acute, but life-threatening skin conditions. Both conditions are usually allergic reactions to medication, however; in some cases, the causes remain unknown. Approximately 1-7 people per million are affected globally each year Here is a summary of their long-term effects: 1. Skin and Mucous Membranes: Scarring: Severe scarring and pigmentation changes can occur, especially in areas where the skin has detached. Dryness and Sensitivity: Chronic dryness and sensitivity of the skin can persist, requiring ongoing dermatological care. Nail Abnormalities: Permanent nail loss or deformities may occur due to damage to the nail beds. 2. Ocular Complications: Chronic Dry Eye: Damage to the tear ducts can lead to persistent dry eye syndrome. Vision Impairment: Scarring of the cornea, conjunctiva, or eyelids can result in vision loss or blindness. Photophobia: Sensitivity to light may persist due to ocular surface damage. 3. Respiratory System: Chronic Respiratory Issues: Damage to the respiratory mucosa can lead to chronic cough, bronchitis, or even pulmonary fibrosis. Airway Obstruction: Severe cases may lead to long-term airway obstruction requiring medical intervention. 4. Gastrointestinal Tract: Esophageal Strictures: Scarring in the esophagus can lead to strictures, causing swallowing difficulties. Malabsorption: Damage to the gastrointestinal lining may result in long-term absorption issues. 5. Genital and Urinary Tract: Strictures and Scarring: Scarring can cause strictures in the urinary tract and genital area, leading to difficulties in urination and sexual dysfunction. 6. Psychological Impact: Post-Traumatic Stress Disorder (PTSD): The traumatic experience and prolonged recovery can lead to PTSD, depression, and anxiety. Body Image Issues: Visible scarring and disfigurement can cause significant distress and impact self-esteem. 7. Neurological Complications: Peripheral Neuropathy: Some patients may experience nerve damage leading to chronic pain or sensory issues. 8. Immune System: Long-term Immunological Changes: SJS/TEN can lead to changes in immune system function, potentially increasing susceptibility to infections or autoimmune disorders. These long-term effects necessitate a multidisciplinary approach to care, involving dermatologists, ophthalmologists, pulmonologists, gastroenterologists, urologists, psychologists, and other specialists to manage the diverse and complex sequelae of these conditions. Regular follow-up and comprehensive care plans are essential for improving the quality of life for affected individuals.

Community Organization We are working on this! Coming soon...

Testimonials I am now part of a group of survivors from many places who zoom and talk, email, and encourage and support each other on a regular basis. It is a valuable asset in my post SJS overlapping TEN day-to-day feel-good moments, a place to gather knowledge, ask questions, and listen to others. Peace and love. ✌️🌸 Jane G. I experienced Stevens-Johnson Syndrome (SJS) in March 2005. I discovered Sonia’s ‘SJS Canada Support Group’ in 2020. SJS is scary, and the long-term symptoms af fect victims diff erently. For me, it’s mostly been an ongoing difficulty with my eyes. Many victims experience SJS much more intensely. SJS Can is a place for survivors and/or guardians to be heard, ask questions, share experiences, and feel safe. It reminds us we’re not alone in this fight and that brighter days are ahead. I greatly appreciate the availability and consistency of Sonia’s group. I respect and am grateful for the work Sonia puts into moving the group and thus SJS awareness forward. Sonia is an example of professionalism and commitment and I really appreciate the community and fellowship her group offers. Jeremy F. My name is YC and I experienced Steven's Johnson's Syndrome (SJS) in November 2019. I discovered Sonia’s ‘SJS Canada Support group in 2021. When I was first diagnosed with SJS, I thought it was something short term and that I would be able to fully recover and resume my life as normally as before. I soon realized that I may be dealing with long term/permanent issues. SJS Canada support group has helped me cope with my diagnosis and have provided valuable information pertaining to treatment and advice. It has been wonderful getting to know the members of the group and hearing their stories. Sonia’s efforts in organizing the meetings and finding guest speakers are greatly appreciated. YC In 2014 at the age of 52 I was hospitalized due to an allergic reaction to a medication which caused my immune system to go out of control and ultimately diagnosed as Stevens Johnson Syndrome. It was so bad that I was not expected to survive but with excellent medical intervention and a brilliant ophthalmologist and surgeries, 7 years later I still have my vision although the trauma of SJS will always be there. I'm grateful for all the support I have received from the SJS TENS Grp of Canada and the information they continually provide. It's a very rare disease and can be life threatening but I am proof that it can be beaten. Paul RG I have learned so much about the SJSCA Support group. I was very hurt learning about the ordeal the founder, my friend and former classmates Sonia Crossdale went through. Mrs Crossdale a strong woman of God be bless and continue the fight in Jesus's name. Marlene A. Hi Sonia, one thing I have learned through this journey is that Angels are all around us. You may not see them but they show themselves when needed. Thank you for all you have done. Dennis P.

Meet The Team Founder/President Founder & President Sonia Whyte-Croasdaile Sonia Whyte-Croasdaile RPN, RSW is a wife, mother, nurse, Registered Social Worker, a trained Relaxation/Life Coach, and the Founder and President of Stevens-Johnson Syndrome Canada. She is experienced in ... Read More Board of Directors Co-Chair Sanjay Kumar Sanjay Kumar is a Sariel Entpreneure. His expertise includes Digital Marketing, IT Consulting Services, and Managing cross-functional teams. Sanjay helps enterprises ... Read More Board Member | Medical Advisor Dr. Bruce Carleton Dr. Bruce Carleton has over 30 years of experience in clinical pharmacology and investigating the safety and effectiveness of drugs used in both children and adults. He is the founder and CEO... Read More Board Member Sonia Bromfield-Cornish TBA Read More Member at Large/Secretary Coleen Lambert Coleen Lambert is a licenced Financial Broker and Coach. Prior to building her own Financial Services and Financial Coaching company in 2020, Coleen worked as a Legal Professional for more than 16 years in various areas... Read More Board Member Phatay Waraich Phatay is a Vendor Manager with TD Bank within the technology team. He has had various roles within the financial industry from procurement and third party risk management to... Read More Patient Representative Jeremy Falk My name is Jeremy Falk and I live in Los Angeles. In 2005 I had a bacteria staph infection. After taking two weeks of a 21-day supply of Bactrim (a Sulfa-based antibiotic), my eyes and throat started to feel inflamed and irritated. I went to ... Read More Board Member Dr. Michele Ramien Dr. Ramien is a hospital-based academic dermatologist at the Alberta Children’s Hospital who is board-certified in both Canada and the United States. A first-generation... Read More Medical Advisors Dr. Bruce Carleton PharmD, FCP, FISPE Dr. Bruce Carleton has over 30 years of experience in clinical pharmacology and investigating the safety and effectiveness of drugs used in both children and adults. He is the founder and CEO... Professor and Chair Division of Translational Therapeutics, Department of Pediatrics Faculty of Medicine University of British Columbia Director Pharmaceutical Outcomes Programme BC Children’s Hospital Senior Clinician Scientist BC Children’s Hospital Research Institute Vancouver Read More Dr. Seema Mane-Kndvilkar TBA TBA Read More Dr. Elizabeth J. Phillips MD, FRCPC, FRACP, FIDSA, FAAAAI Dr. Elizabeth Phillips is a physician-scientist clinically trained in infectious diseases, immunology, and clinical pharmacology who has established new clinical and research programs in drug hypersensitivity... Professor of Medicine, Dermatology, Pathology, Microbiology, and Immunology John A. Oates Chair in Clinical Research Director, Center for Drug Safety and Immunology Director, Personalized Immunology, John A. Oates Institute for Experimental Therapeutics Vanderbilt University Medical Center Professor of Pharmacology Vanderbilt University School of Medicine Read More Coordinators Francene Francis Administrative Assistant to the President Francene has served in this capacity since 2022. She has a personal stake in the organization as a close family member has persevered and survived the onslaught of the illnesses and still continues to live with the aftereffects. Alongside the President, Francene is responsible for overseeing the daily operations of the organization and ensuring that the President's visions for SJS Canada are carried out to the best of our volunteer capacity. Felipe Cayres Web Developer and Team Lead Manage web development at SJS Canada. Lead a team, ensure compliance, and improve user experience. Using technology for better health outcomes. Kevin Kim Patient Support Coordinator Since March 2023, he has been organizing monthly support group meetings for SJS/TEN survivors and loved ones affected. He also organizes expert guest speakers who present on, and answer questions about, the long-term challenges faced by the patient support group members. He has also spearheaded writing and producing a SJS/TEN Patient Handbook with input from SJS survivor and experts in the field. He hopes to continue expanding the role of Patient Support Coordinator. Outside of SJS Canada, Kevin is a MD/PhD student at McMaster University, Hamilton, Ontario aspiring to be a physician-scientist caring for those affected by complex dermatologic conditions and improving their care. Aria Momand Fundraising Coordinator TBA Farzan Rezayati Ajibisheh Marketing and Communications Coordinator TBA Tyanna Supreme Grant Team Coordinator She is a PhD candidate in Molecular Genetics at the University of Toronto. As part of the grant writing team, she brings a strong scientific foundation to help SJS Canada secure more funding to better support the community. Tyanna is deeply passionate about mentorship and volunteer work, particularly in Black spaces, where she strives to foster empowerment and connection. She is committed to continuing her learning about Stevens-Johnson Syndrome and raising greater awareness of the disease. Advisory Committee Karen Worthy PhD, MPH, RN, CNE Dr. Karen Worthy is an Associate Professor at the University of South Carolina College of Nursing. Dr. Worthy has a 26-year history in professional nursing and has been a nurse educator for 17 years. She received... Read More Vincent Cornish Vincent Cornish, FICB. Vincent is a “Fellow of the Institute of Canadian Bankers”. He obtained his FICB designation through extensive studies at: York University, TMU (Toronto Metropolitan University – formally Ryerson University)... Read More Lorna Baker Lorna has been a Registered Nurse since 1996 and served as a Community Health Nurse from 1997 to 2010. Following this, she held the position of Certified Diabetes Educator at Unison Health and Community Services from... Read More

Global SJS Awareness Month: August August – A Month of Awareness, Advocacy, and Action Every August, SJS Canada joins organizations and individuals around the world to recognize Global Stevens-Johnson Syndrome (SJS) Awareness Month. A time dedicated to shining a light on Stevens-Johnson Syndrome (SJS) and Toxic Epidermal Necrolysis (TEN). These rare but severe reactions, most often triggered by medications, can be life-threatening and leave survivors with long-term physical and emotional impacts. Why Awareness Matters Early recognition of symptoms is critical to improving outcomes. Increased awareness among the public and healthcare professionals can lead to faster diagnosis, better treatment, and fewer preventable cases. By educating others, we can help save lives and reduce suffering. Our Goals During Awareness Month Educate about the signs, risks, and long-term effects of SJS/TEN Empower survivors and families to share their stories and connect with others Advocate for safer prescribing practices and stronger patient protections Engage communities through events, campaigns, and social media outreach How You Can Get Involved Join our events – including our annual Virtual SJS/TEN Educational Webinar and Move/Walk/Run happening mid to late summer Share your story – Survivor voices bring powerful awareness and connection Spread the word on social media using our downloadable graphics and hashtags Attend our Canada Day booth at Lion’s Park in Brantford (July 1st) to kick off the conversation early Support our Membership Drive – Help us grow and sustain our work year-round Together, We Are Stronger SJS Awareness Month is not just about information—it’s about community, compassion, and action. Whether you're a survivor, caregiver, healthcare professional, or supporter, your voice SJS Awareness Month Activities | This is how you can join the fight. We have some activities during August that you can join to support us in our fight. Check them out.

Blog Fueling the Fight: Nutrition and Physical Recovery After SJS/TEN Recovery from Stevens–Johnson Syndrome (SJS) and Toxic Epidermal Necrolysis (TEN) does not end when the skin stops blistering. For many survivors, the weeks and months after hospitalization are defined by rebuilding strength, healing wounds, and restoring physical function. Two pillars of this recovery, nutrition and physical rehabilitation, are often under-discussed, yet they are central to healing. This post explores what research and clinical guidance tell us about how f Jan 8 4 min read Prevention Starts with Awareness: Reducing the Risk of Severe Drug Reactions Every October, Canadian Patient Safety Week reminds us of the importance of preventing harm before it happens. For rare but serious conditions like Stevens–Johnson Syndrome (SJS) and Toxic Epidermal Necrolysis (TEN), prevention means reducing risk for everyone: by improving drug safety, recognizing early signs, and responding quickly when reactions occur. While we cannot always predict who will develop them, greater awareness can help reduce the risk. Understanding the Risk Nov 18, 2025 3 min read Recognizing and Addressing SJS/TEN in Skin of Color Stevens–Johnson yndrome (SJS) and toxic epidermal necrolysis (TEN) are rare, life-threatening skin reactions that can affect anyone.... Oct 9, 2025 2 min read August Is Global SJS Awareness Month: The Power of Awareness and What You ShouldKnow Stevens–Johnson Syndrome (SJS) and Toxic Epidermal Necrolysis (TEN) are rare but devastating drug reactions that can quickly escalate... Aug 14, 2025 3 min read Dr. Karen Worthy Story Stronger Than the Storm of SJS/TEN: A Nurse Educator’s Survival, Faith, and Renewal Karen Worthy, Ph.D., MPH, RN, CNE, CNEcl University... Jul 24, 2025 7 min read The Role of a Multidisciplinary Team in SJS/TEN Care Stevens-Johnson Syndrome (SJS) and Toxic Epidermal Necrolysis (TEN) are rare but extremely serious conditions often triggered by... Jul 22, 2025 3 min read 1 2 3 4 5

Survivor's Stories We would be honoured to share your experience as a beacon of support and unity. Sonia's City TV Interview Julie’s story Meet Julie who miraculously survived SJS/TEN. YC’s story I was a completely healthy individual until I got the flu vaccine... Jeremy’s story I had a bacterial infection in 2005. After 13 days of taking antibiotics, I developed... Kathleen’s story My name is Kathleen, and I am from Washington, USA, just north of... Anastasia’s Story I was diagnosed with TEN in early 2016 when I was 28 years old. I was 5th grade... Jane’s story My name is Jane Grady and I’m an SJS/TEN survivor. I was prescribed a medication ... Jennifer’s Story My name is Jennifer Lane. I have just turned 48, and this is my SJS/Ten story. It all... Bruce’s Story Late February 2005, I developed symptoms of fever, headache, and... Kim’s Story The impact of Stevens Johnson Syndrome affects each victim differently depending on... Dr. Karen's Story Karen Worthy, Ph.D., MPH, RN, CNE, CNEcl University of South Carolina, College of Nursing Professor...

Find a Doctor Do you need help finding an SJS/TEN Doctor In your area? We can help you! Send us a message and we’ll get back to you shortly. First name Phone Email Location Your message Send Thanks for submitting! We'll contact you shortly. Are you a Doctor? Full Name Email Code Phone Speciality Location Your message Send Thanks for submitting! We'll contact you shortly. Do you want to register to be in our SJS/TEN Doctor's referral list? Register here.