top of page

Search Results

Search this site

34 results found with an empty search

  • Events | SJS Canada

    August is SJS Awareness Month and Stevens Johnson Syndrome Canada has an exciting lineup of events and activities planned throughout the entire month to bring our community together in awareness, education, and solidarity. Please refer to our August Calendar of Events for the full schedule of what is coming your way this month. Most importantly, mark your calendars for the SJS Awareness Fundraising Game Night taking place on Tuesday, August 18, 2026 from 6:00 PM to 7:00 PM Eastern Time. This is a free one-hour virtual event featuring live interactive games and SJS/TEN educational content open to everyone. Do not miss it — sign up today using the registration link below and join us for an evening of community, awareness, and meaningful impact. Stay connected with us throughout August for daily awareness content, survivor stories, and campaign updates. Together we are hope. Together we are healing. Together we are one community. 💙 Registration Link: Webinar Link: Click Here Click Here Upcoming Events 2026 Virtual Town Hall / Webinar Thu, Aug 27 https://us02web.zoom.us/j/86973918683?pwd=Q More info RSVP Multiple Dates SJSC Support Group Wed, Oct 21 https://us02web.zoom.us/j/86973918683?pwd=Q More info RSVP Volunteer Appreciation Week – A Heartfelt Thank You During Volunteer Appreciation Week, we proudly recognize and celebrate the incredible individuals who give their time, compassion, and expertise to support the SJS/TEN community. Your dedication is the heartbeat of SJS Canada. Because of you, we are able to provide support, raise awareness, and continue advocating for those impacted by Stevens-Johnson Syndrome and Toxic Epidermal Necrolysis. We are deeply grateful for all that you do. Your commitment truly makes a difference. Thank you for being part of our community . Events Calendar August 2026 Today Mon Tue Wed Thu Fri Sat Sun 27 28 29 30 31 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 3:30 PM SJSC Support Group 20 21 22 23 24 25 26 27 7:00 PM 2026 Virtual Town Hall / Webinar 28 29 30 31 1 2 3 4 5 6 We Need Your Support Today! Donate Past Events Multiple Dates Wed, Aug 19 SJSC Support Group / https://us02web.zoom.us/j/86973918683?pwd=Q Details Aug 19, 2026, 3:30 PM – 4:30 PM EDT https://us02web.zoom.us/j/86973918683?pwd=Q +2 more Mon, Apr 20 Annual General Meeting (AGM) 2026 / Zoom Meeting Details Apr 20, 2026, 7:15 PM – 9:15 PM EDT Zoom Meeting +21 more Thu, Feb 26 Rare Disease Month Webinar / Zoom Details Feb 26, 2026, 7:00 PM – 9:00 PM Zoom +34 more Multiple Dates Wed, Jan 21 SJSC Support Group / Virtual Zoom online Conference Details Jan 21, 2026, 3:30 PM – 4:30 PM EST Virtual Zoom online Conference See All Multiple Dates Tue, Dec 09 Elpizo Counseling / Zoom Meeting Details Dec 09, 2025, 6:00 PM – 7:30 PM Zoom Meeting See All Sun, Dec 07 December Benefits Concert / Virtual Zoom Event Details Dec 07, 2025, 6:00 PM – 9:00 PM EST Virtual Zoom Event Join us for an unforgettable night of performances, fun and entertainment at our year end Benefits Concert. +17 more Sun, Dec 07 Save the Date Christmas Concert / Zoom Details Dec 07, 2025, 6:00 PM – 9:30 PM Zoom Thu, Aug 28 SJS Webinar- Global Connections / Online: Virtual Zoom online Conference Details Aug 28, 2025, 7:00 PM – 9:00 PM Online: Virtual Zoom online Conference +22 more Fri, Aug 15 SJS Virtual Move-A-Thon / Zoom Details Aug 15, 2025, 7:00 AM – Aug 17, 2025, 11:00 PM Zoom Join Us for the SJS/TEN Awareness Virtual Walk-a-Thon See All Mon, May 05 Annual General Meeting (AGM) 2025 / Zoom Meeting Details May 05, 2025, 6:30 PM – 8:00 PM EDT Zoom Meeting +28 more Multiple Dates Wed, Apr 09 Elpizo Counseling / Zoom Details Apr 09, 2025, 6:00 PM – 7:30 PM EDT Zoom Tue, Feb 25 SJS Canada February Webinar / Zoom Details Feb 25, 2025, 7:00 PM – 9:00 PM Zoom +70 more Wed, Jan 15 SJSC Support Group / https://us02web.zoom.us/j/82137370516?pwd=W Details Jan 15, 2025, 3:30 PM – 4:30 PM https://us02web.zoom.us/j/82137370516?pwd=W See All Multiple Dates Wed, Dec 18 SJSC Support Group / https://us02web.zoom.us/j/82137370516?pwd=W Details Dec 18, 2024, 3:30 PM – 4:30 PM https://us02web.zoom.us/j/82137370516?pwd=W Sun, Dec 08 Season of Hope Benefit Event / Virtual Zoom Event Details Dec 08, 2024, 6:00 PM – 8:30 PM EST Virtual Zoom Event Join us for an unforgettable night of live performances, fun and entertainment at the Season of Hope Benefit. +14 more Multiple Dates Wed, Dec 04 ElPizo Counseling / https://2ly.link/20Ymj Details Dec 04, 2024, 6:00 PM – 7:30 PM EST https://2ly.link/20Ymj Thu, Aug 29 SJS Awareness Month Town Hall / Zoom Town Hall Details Aug 29, 2024, 7:30 PM – 9:00 PM Zoom Town Hall +26 more Thu, Jul 11 Games Night - Virtual Edition / ZOOM Details Jul 11, 2024, 6:00 PM – 8:30 PM ZOOM Load More

  • Stevens Johnson Syndrome | Stevens-johnson Syndrome Canada

    Stevens -Johnson Syndrome Canada. SJS Support group. Learn about the disease that burns the body from the inside out. Promoting health by providing people suffering from SJS/TEN as well as their families and care givers with access to related counselling, support groups and information programs. Welcome to Stevens-Johnson Syndrome Canada Providing support for survivors, family, friends, and caregivers in the SJS/TEN community Our Mission Our Goal, Vision & Commitment Our Events Register & Help Make Change Get Involved Volunteer, Participate, or Donate Upcoming Events 2026 Virtual Town Hall / Webinar Thu, Aug 27 https://us02web.zoom.us/j/86973918683?pwd=Q More info Save spot Multiple Dates SJSC Support Group Wed, Oct 21 https://us02web.zoom.us/j/86973918683?pwd=Q More info Save spot Join the Circle of Hope Give Monthly. Create Lasting Impact. Every month, your generosity helps SJS Canada support survivors of Stevens-Johnson Syndrome (SJS) and Toxic Epidermal Necrolysis (TEN) through advocacy, awareness, and education. By joining the Circle of Hope, you become part of a compassionate community that ensures no survivor faces their journey alone. Whether you give $5, $10, $20, or more, your steady support provides strength, stability, and hope all year long. Join today and make your impact last. Become a Monthly Donor Read More Donate Monthly Subscribe to Our Newsletter First Name Last name Email Sign Up At SJS Canada, we are committed to promoting health by providing those affected by SJS/TEN, as well as their families and caregivers, with access to counseling, support groups, and information programs. Read About the Center Jane G. I am now a part of a group of survivors from many places who zoom and talk, email, and encourage and support each other on a regular basis. It is a valuable asset in my post SJS overlapping TEN day to day feel good moments, a place to gather knowledge, ask questions and listen to others. Peace and love. ✌️🌸 Testimonials See all Donate Today Donate to Make a Difference. Your donation is crucial to our mission of supporting patients and their fa milies who are affected by SJS/TEN. Donate Now

  • Newsletter | SJS Canada

    Newsletter SJSC Summer 2024 Newsletter Download SJSC 2023 Year-End Newsletter Download SJSC Spring 2024 Newsletter Download

  • Affiliates | SJS Canada

    Affiliates Our partnerships as affiliates with the Canadian Skin Patient Alliance (CSPA) and the International Alliance of Dermatology Patient Organizations (IADPO—also known as GlobalSkin) have afforded us the opportunity to collaborate and build relationships with multiple organizations that treat a variety of skin disorders. By doing so, we are able to expand the reach of the SJS/TEN patient community so they have access to added resources. Our skin, the largest organ in our body is the first introduction of oneself to the world. These organizations help to build SKIN confidence and define the skin you are in. Registered member with the National Organization for Rare Disease (NORD) since 2023. Canadian Skin has some valuable information in support of SJS click here for more. The Canadian Skin Patient Alliance (CSPA) is a national non-profit organization dedicated to advocating, educating and supporting Canadians living with skin diseases, conditions and traumas. They serve as an umbrella organization for Canadian patient groups and organizations that deal with specific skin disorders. By working together, they advocate for the needs of skin patients across the country and provide a broad range of education and support. Visit canadianskin.ca Founded on principles of patient-centered care and global collaboration, the World Patients Alliance (WPA) unites diverse patient organizations worldwide. With a steadfast commitment to empowering patients and improving healthcare outcomes, WPA facilitates dialogue among its extensive network of members spanning various health conditions and geographical locations. SJS Canada's inclusion as a Full Member underscores its dedication to enhancing patient support, education, and advocacy on an international scale. This milestone strengthens WPA’s mission to champion patient rights and amplify the collective voice of patients globally. The International Alliance of Dermatology Patient Organizations (IADPO – also known as GlobalSkin) is a unique global alliance, committed to improving the lives of skin patients worldwide. We nurture relationships with members, partners and all involved in healthcare ─ building dialogue with decision-makers around the globe to promote patient-centered healthcare. GlobalSkin works to empower its more than 167 patient organization members ─ located in 53 countries representing more than 60 disease areas ─ to reach more patients and provide them with greater support, education and advocacy. Visit globalskin.org Lupus Ontario is a dedicated provincial organization committed to improving the lives of those affected by lupus. We foster strong relationships with our members, partners, and everyone involved in healthcare, creating a dialogue with decision-makers across the region to promote patient-centered healthcare. Lupus Ontario strives to empower its extensive network of patient organization members, providing support, education, and advocacy to reach more patients and enhance their quality of life. With a focus on patient needs, we work tirelessly to offer greater resources and assistance to those living with lupus throughout Ontario. The National Organization for Rare Disorders (NORD) is a leading advocate for individuals and families affected by rare diseases, dedicated to improving their lives through advocacy, education, and support. NORD brings together a diverse network of patient organizations, healthcare partners, and stakeholders to foster dialogue and drive impactful change in rare disease care. Representing over 30 million Americans affected by rare diseases, NORD advocates for policies that advance research, accelerate treatment development, and ensure access to therapies. Visit rarediseases.org Streaming Praise Radio (sprlivefm.com) is Canada’s first gospel internet radio station, offering 24/7 Christian music and talk shows, including the popular Praise Life morning show. It supports diverse music genres and independent artists. The station is deeply involved in community initiatives and has embraced digital platforms with successful YouTube live-streaming shows. During the 2020 pandemic, it hosted its first annual organ donor awareness benefit virtual concert, highlighting its commitment to making a positive impact. Visit worldpatientsalliance.org Visit lupusontario.org Visit sprlivefm.com

  • Survivor Handbook | SJS Canada

    SJS/TEN Canada Survivors' Handbook Download Handbook PDF

  • Circle of Hope | SJS Canada

    SJS Canada: Circle of Hope Join Our Community of Compassionate Monthly Donors Every day, survivors of Stevens-Johnson Syndrome (SJS) and Toxic Epidermal Necrolysis (TEN) face unimaginable challenges, from the physical scars to the emotional toll of recovery. At SJS Canada, we walk alongside survivors and their families, offering advocacy, awareness, and support when it’s needed most. The Circle of Hope brings together caring individuals like you, people who believe no survivor should face this journey alone. Join The Circle of Hope Today Purpose & Vision The Circle of Hope is SJS Canada’s monthly donor initiative, created to build a strong, compassionate community of supporters who make ongoing impact possible. Your monthly gift helps us: Sustain vital survivor support programs: ensuring individuals and families have a lifeline through their recovery. Advance awareness and advocacy efforts: helping to prevent misdiagnosis and improve patient care. Support education and research: promoting better understanding and early recognition of SJS/TEN. Maintain organizational stability: allowing us to respond quickly when families reach out for help Why Give Monthly? When you give monthly, you’re not just making a donation, you’re joining a movement of hope, healing, and change. Consistency matters: Your steady support means we can serve survivors every month, not just when one-time donations come in. Impact grows: Even small gifts — $5, $10, $20, or more add up to life-changing support throughout the year. You belong: As part of our Circle of Hope, you’ll receive updates and stories showing how your generosity makes a real difference. Together, we can create a future where every SJS/TEN survivor feels seen, supported, and empowered. Join The Circle of Hope Today What Your Monthly Gift Can Do Your monthly contribution, no matter the size, directly fuels SJS Canada’s programs and outreach: 💜 $5/month – Helps provide printed resources and survivor guides to newly diagnosed individuals and their families. 💜 $10/month – Supports outreach and education initiatives to raise awareness among healthcare professionals and the public. 💜 $20/month – Contributes to survivor peer support programs, ensuring no one faces recovery alone. 💜 $50/month – Helps fund advocacy and policy efforts to improve patient care and systemic awareness of SJS/TEN. 💜 $100/month and above – Strengthens the long-term sustainability of SJS Canada’s national programs and emergency response initiatives. Every contribution builds a stronger, more compassionate network of care and awareness across Canada. Voices of Hope “SJS Canada was there when I didn’t know where to turn. The support, understanding, and information they gave me helped me rebuild my life. Knowing there are people out there who care gives me strength.” — SJS Survivor, Ontario “Becoming a monthly donor is my way of giving back and helping others get the same support I once received. It’s a small act that creates lasting hope.” — Circle of Hope Member Join the Circle of Hope Today Your commitment gives hope that lasts all year long. Click below to become a Monthly Donor and make your impact today. Join the Circle of Hope – Donate Monthly Join The Circle of Hope Today

  • SJS Educational | SJS Canada

    SJS Educational Do you know what's SJS? SJS and TEN represent different degrees of severe, acute, life-threatening mucocutaneous reactions. It causes the skin to become red and purple, tender, and peel away from the body. Know more SJS Awareness Month Read more... SJS Information Poster Download Poster Sunnybrook Magazine Sonia’s Story Read story Survivor's Stories Find a Doctor Read more... SJS Facts Sheet Download Sheet SJS Brochure Read story A case of TEN (with Dr. Neil Shear- Sunnybrook hospital): Read story Supportive Story Sharing: Understand the Effect of SJS/TEN on Cognition, Emotion, and Behavior: What We Have Learned from Qualitative Interviews. Great Debates in Medical Dermatology. SJS/TEN: Acute reaction, or chronic disease? Concerts: 2020 2022 2024 Town Hall Meetings Skin of Colour Eye & Skin: How SJS/TEN Affects the Eyes & Skin of Color On February 29, 2024, a virtual town hall titled "Eye & Skin: How SJS/TEN Affects the Eyes & Skin of Color" raised awareness about Stevens-Johnson Syndrome (SJS) and Toxic Epidermal Necrolysis (TEN). Moderated by Coleen Lambert, it featured opening remarks from Sonia Whyte-Croasdaile, a moment of silence for victims, and insights from speakers like Francene Francis and patient representatives Karen Worthey and Jeremy Falk. Experts Dr. Rannakoe Lehloenya, Dr. Martin Huer, and Dr. Gloria B. Chiu discussed skin and ocular issues related to SJS/TEN, concluding with a Q&A session and closing remarks from Vincent Cornish on the importance of community support. Eye of the Storm Head to Toe On August 29, 2024, the virtual town hall "SJS/TEN Head to Toe" was co-moderated by Coleen Lambert and Sabrina Hundal. It opened with a welcome message, land acknowledgment, and remarks from Sonia Whyte-Croasdaile. Attendees observed a moment of silence for those affected by Stevens-Johnson Syndrome (SJS) and Toxic Epidermal Necrolysis (TEN) and learned about the SJSC Move-A-Thon Fundraiser. Patient representatives Katie Farah and Kamna Narin shared personal stories, while experts Dr. Michelle Ramien, Dr. Esther Fuchs, Dr. Darren G. Gregory, and Dr. Elizabeth J. Phillips offered insights on SJS/TEN. The event concluded with a roundtable discussion, a prize draw by Frank Linhart, and closing remarks thanking participants for their contributions to awareness efforts. SJS/TEN & DRESS An in-depth webinar on Stevens-Johnson Syndrome (SJS), Toxic Epidermal Necrolysis (TEN), and Drug Reaction with Eosinophilia and Systemic Symptoms (DRESS). This session brings together medical experts and patient representatives and advocates to explore the clinical presentation, diagnosis, treatment, and long-term impacts of these rare but serious adverse drug reactions. SJS/TEN Research Study Application is no longer available.

  • Support Group | SJS Canada

    Support Group Most often when an individual is trying to cope through challenging times, family members and friends may sympathize, but they don’t always know what to say or the best ways to help. Reasons to join our SJS/TEN Support Group: We care for supporters and SJS/TEN survivors on the recovery journey. The group was developed to connect those of us who are dealing with similar challenging circumstances—the long-term effects of SJS/TEN. Through sharing our experiences, we can offer support, encouragement, and comfort to each other and receive the same in return. The SJS/TEN recovery journey can be very challenging. Therefore, one of the best medicines is often the voice of people who have been in your shoes. Our monthly meetings allow personal conversations with expert medical specialists in the SJS/TEN field. Our Support Group is a safe and nurturing space where individuals come together to share experiences, encouragement, and foster personal growth. Our mission is to empower each member their journey to better health through connection, understanding, and shared resources. Join us as we support one another in achieving our wellness goals and building a healthier future together. Read more about SJS treatment info@sjscanada.org Name Email Subject Your message Send Thanks for submitting! REGIONAL SUPPORT. Stevens-Johnson Syndrome Foundation in the United States of America (USA): Read More SJS Awareness in the United Kingdom (UK): Read More Kindness for Kimberlee: Read More SJS Kids Support Read More RareConnect: Read More National Organization for Rare Disorders (NORD): Read More Canadian Organization for Rare Disorders (CORD): Read More PTSD Coach App: Read More PTSD Coach USA App: Read More Loyola SJS Support Group: SJS Support group based in Illinois, USA. Those interested can contact Heidi Maidl (phone: (219) 263-3334, e-mail: babybellissima3@yahoo.com ) SJS Oregon: Read More

  • Find a Doctor | SJS Canada

    Find a Doctor Do you need help finding an SJS/TEN Doctor In your area? We can help you! Send us a message and we’ll get back to you shortly. First name Phone Email Location Your message Send Thanks for submitting! We'll contact you shortly. Are you a Doctor? Full Name Email Code Phone Speciality Location Your message Send Thanks for submitting! We'll contact you shortly. Do you want to register to be in our SJS/TEN Doctor's referral list? Register here.

  • Make a Donation | SJS Canada

    Ways to Donate Thank you for your support! Your donation will greatly assist us . During the past few years, the pandemic impacted some of our programs, however, we were able to pivot to online and virtual meeting spaces! This has given rise to a series of Town Hall meetings featuring guest speakers and medical professionals, SJS/TEN conferences, public speaking engagements, and other virtual events, including our annual SJS virtual fundraising concerts! Our monthly survivors' support group meets online and co-hosts counselling workshops. Over the next 5 years, we are aiming to expand on these services and incorporate new ones to further the support, assistance, and education of Stevens-Johnson Syndrome and Toxic Epidermal Necrolysis. No one should have to journey through this alone; we are stronger together! Your donations will help us to continue the important work of supporting survivors and caregivers, as well as to promote awareness and education of these rare skin diseases. CanadaHelps CanadaHelps accepts donations on behalf of SJS Canada. You can give online from anywhere in Canada, and your contribution will go directly toward supporting SJS Canada’s mission. CanadaHelps handles all the details — from secure donation processing to tax‑receipting — so you don’t have to. Once your donation is processed, you’ll receive a tax receipt via email, helping you maximize your tax credits while making a meaningful impact. Donate on CanadaHelps E-Transfer You can now support SJS Canada directly by sending an Interac e-Transfer from your bank account. It's a quick, secure, and cost-effective way to give. 100% of your donation goes to SJS Canada — with no processing fees — helping to maximize the impact of your gift. To donate via e-Transfer, simply: Send your donation to: donations@sjscanada.org In the message or notes section, include your name and email address, so we can be in contact with you. Your generous contribution helps support the ongoing work of SJS Canada — thank you for your support! Donate a Car Canada accepts vehicle donations for SJS Canada. Free towing is provided in most areas across Canada, or you can drop off your vehicle to maximize your donation. When you donate your car, truck, RV, boat, or motorcycle to SJS Canada, it will either be recycled or re-sold (depending on its condition, age and location). Donate a Car Canada will look after all the details to make it easy for SJS Canada to benefit. You will receive a tax receipt after your donation has been processed! Car Donation: SJS Canada is partnering with Donate a Car Canada to accept your car donation! You will be provided free towing, or you can drop off your vehicle to maximize your donation. When you donate your car, truck, RV, boat, or motorcycle to SJS Canada through Donate A Car Canada, it will either be recycled or re-sold (depending on its condition, age and location). Donate a Car Canada will look after all the details to make it easy for SJS Canada to benefit. You will receive a tax receipt after your car donation has been processed! Vehicle Donation: SJS Canada is partnered with Donate a Car Canada to accept your vehicle donation! You will be provided free towing, or you can drop off your vehicle to maximize your donation. When you donate your car, truck, RV, boat, or motorcycle to SJS Canada through Donate A Car Canada, it will either be recycled or re-sold (depending on its condition, age and location). Donate a Car Canada will look after all the details to make it easy for SJS Canada to benefit. You will receive a tax receipt after your vehicle donation has been processed! Junk Car: Your junk car can help SJS Canada! We have partnered with Donate a Car Canada to accept your car donation. You will be provided free towing, or you can drop off your vehicle to maximize your donation. When you donate your car, truck, RV, boat, or motorcycle to SJS Canada through Donate A Car Canada, it will either be recycled or re-sold (depending on its condition, age and location). Your vehicle may not be a junk car, and they can help with that, too! Donate a Car Canada will look after all the details to make it easy for SJS Canada to benefit. You will receive a tax receipt after your vehicle donation has been processed! Car Removal: Looking for simple and free car removal? SJS Canada is partnering with Donate a Car Canada to accept your car donation! You will be provided free towing, or you can drop off your vehicle to maximize your donation. When you donate your car, truck, RV, boat, or motorcycle to SJS Canada through Donate A Car Canada, it will either be recycled or sold at auction (depending on its condition, age and location). Donate a Car Canada will look after all the details, from car removal to the disbursal of your gift, making it easy for you and SJS Canada to benefit. You will receive a tax receipt after your vehicle donation has been processed! Donate a Car Donate a Car Canada accepts Vehicle Donations for SJS Canada. Donate Your Car Here

  • Blog | SJS Canada

    Blog The Hidden Costs of Surviving SJS/TEN in Canada In Canada, we often take pride in our universal healthcare system. When a medical catastrophe like Stevens-Johnson Syndrome (SJS) or Toxic Epidermal Necrolysis (TEN) strikes, the immediate hospital costs, such as the ICU stay, the specialized burn unit care, and the life-saving interventions, are largely covered. However, for survivors, discharge from hospital does not signal the end of the condition or financial burden. In fact, for many, it is just the beginning. While the May 13 3 min read Karen Sgori’s SJS Story I was diagnosed in April of 2021 with SJS. I had started taking lamotrigine. I was on it for three weeks when I started to feel bad. It started with a high fever of 104. I went to the ER on April 16th, 2021, and all they did was test me for Covid. It was negative and they sent me home. The next day I did a televisit and that doctor put me on an antibiotic with sulfa in it. Two days later I went back to the ER feeling worse and getting a rash. Same thing tested me for Covid an May 10 2 min read The Unseen Emergency: Understanding Ocular Involvement in SJS/TEN When we talk about Stevens-Johnson Syndrome (SJS) and Toxic Epidermal Necrolysis (TEN), the immediate focus is often on the severe and visible impact on the skin. However, SJS/TEN is a mucocutaneous condition, meaning it attacks the mucous membranes just as aggressively. For up to 80% of patients, the eyes are directly on the front lines of this immune response. Because SJS/TEN is incredibly rare, bringing awareness to the different clinical topics within the disease is ess Mar 27 3 min read When a Rare Disease Is Missed: Misdiagnosis of Stevens–Johnson Syndrome and Why It Matters Stevens–Johnson Syndrome (SJS) and Toxic Epidermal Necrolysis (TEN) are rare, life-threatening reactions, most often triggered by medications. Despite their severity, early SJS/TEN is frequently misdiagnosed, delaying withdrawal of the offending drug and appropriate care. For a condition where hours and days matter, misrecognition can significantly worsen outcomes. As we recognize Rare Disease Month, it is important to examine why SJS/TEN is so often missed, what it is common Feb 18 3 min read Fueling the Fight: Nutrition and Physical Recovery After SJS/TEN Recovery from Stevens–Johnson Syndrome (SJS) and Toxic Epidermal Necrolysis (TEN) does not end when the skin stops blistering. For many survivors, the weeks and months after hospitalization are defined by rebuilding strength, healing wounds, and restoring physical function. Two pillars of this recovery, nutrition and physical rehabilitation, are often under-discussed, yet they are central to healing. This post explores what research and clinical guidance tell us about how f Jan 8 4 min read Prevention Starts with Awareness: Reducing the Risk of Severe Drug Reactions Every October, Canadian Patient Safety Week reminds us of the importance of preventing harm before it happens. For rare but serious conditions like Stevens–Johnson Syndrome (SJS) and Toxic Epidermal Necrolysis (TEN), prevention means reducing risk for everyone: by improving drug safety, recognizing early signs, and responding quickly when reactions occur. While we cannot always predict who will develop them, greater awareness can help reduce the risk. Understanding the Risk Nov 18, 2025 3 min read 1 2 3 4 5

bottom of page