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- Circle of Hope | SJS Canada
SJS Canada: Circle of Hope Join Our Community of Compassionate Monthly Donors Every day, survivors of Stevens-Johnson Syndrome (SJS) and Toxic Epidermal Necrolysis (TEN) face unimaginable challenges, from the physical scars to the emotional toll of recovery. At SJS Canada, we walk alongside survivors and their families, offering advocacy, awareness, and support when it’s needed most. The Circle of Hope brings together caring individuals like you, people who believe no survivor should face this journey alone. Join The Circle of Hope Today Purpose & Vision The Circle of Hope is SJS Canada’s monthly donor initiative, created to build a strong, compassionate community of supporters who make ongoing impact possible. Your monthly gift helps us: Sustain vital survivor support programs: ensuring individuals and families have a lifeline through their recovery. Advance awareness and advocacy efforts: helping to prevent misdiagnosis and improve patient care. Support education and research: promoting better understanding and early recognition of SJS/TEN. Maintain organizational stability: allowing us to respond quickly when families reach out for help Why Give Monthly? When you give monthly, you’re not just making a donation, you’re joining a movement of hope, healing, and change. Consistency matters: Your steady support means we can serve survivors every month, not just when one-time donations come in. Impact grows: Even small gifts — $5, $10, $20, or more add up to life-changing support throughout the year. You belong: As part of our Circle of Hope, you’ll receive updates and stories showing how your generosity makes a real difference. Together, we can create a future where every SJS/TEN survivor feels seen, supported, and empowered. Join The Circle of Hope Today What Your Monthly Gift Can Do Your monthly contribution, no matter the size, directly fuels SJS Canada’s programs and outreach: 💜 $5/month – Helps provide printed resources and survivor guides to newly diagnosed individuals and their families. 💜 $10/month – Supports outreach and education initiatives to raise awareness among healthcare professionals and the public. 💜 $20/month – Contributes to survivor peer support programs, ensuring no one faces recovery alone. 💜 $50/month – Helps fund advocacy and policy efforts to improve patient care and systemic awareness of SJS/TEN. 💜 $100/month and above – Strengthens the long-term sustainability of SJS Canada’s national programs and emergency response initiatives. Every contribution builds a stronger, more compassionate network of care and awareness across Canada. Voices of Hope “SJS Canada was there when I didn’t know where to turn. The support, understanding, and information they gave me helped me rebuild my life. Knowing there are people out there who care gives me strength.” — SJS Survivor, Ontario “Becoming a monthly donor is my way of giving back and helping others get the same support I once received. It’s a small act that creates lasting hope.” — Circle of Hope Member Join the Circle of Hope Today Your commitment gives hope that lasts all year long. Click below to become a Monthly Donor and make your impact today. Join the Circle of Hope – Donate Monthly Join The Circle of Hope Today
- SJS Educational | SJS Canada
SJS Educational Do you know what's SJS? SJS and TEN represent different degrees of severe, acute, life-threatening mucocutaneous reactions. It causes the skin to become red and purple, tender, and peel away from the body. Know more SJS Awareness Month Read more... SJS Information Poster Download Poster Sunnybrook Magazine Sonia’s Story Read story Survivor's Stories Find a Doctor Read more... SJS Facts Sheet Download Sheet A case of TEN (with Dr. Neil Shear- Sunnybrook hospital): Read story Supportive Story Sharing: Understand the Effect of SJS/TEN on Cognition, Emotion, and Behavior: What We Have Learned from Qualitative Interviews. Great Debates in Medical Dermatology. SJS/TEN: Acute reaction, or chronic disease? Concerts: 2020 2022 2024 Town Hall Meetings Skin of Colour Eye & Skin: How SJS/TEN Affects the Eyes & Skin of Color On February 29, 2024, a virtual town hall titled "Eye & Skin: How SJS/TEN Affects the Eyes & Skin of Color" raised awareness about Stevens-Johnson Syndrome (SJS) and Toxic Epidermal Necrolysis (TEN). Moderated by Coleen Lambert, it featured opening remarks from Sonia Whyte-Croasdaile, a moment of silence for victims, and insights from speakers like Francene Francis and patient representatives Karen Worthey and Jeremy Falk. Experts Dr. Rannakoe Lehloenya, Dr. Martin Huer, and Dr. Gloria B. Chiu discussed skin and ocular issues related to SJS/TEN, concluding with a Q&A session and closing remarks from Vincent Cornish on the importance of community support. Eye of the Storm Head to Toe On August 29, 2024, the virtual town hall "SJS/TEN Head to Toe" was co-moderated by Coleen Lambert and Sabrina Hundal. It opened with a welcome message, land acknowledgment, and remarks from Sonia Whyte-Croasdaile. Attendees observed a moment of silence for those affected by Stevens-Johnson Syndrome (SJS) and Toxic Epidermal Necrolysis (TEN) and learned about the SJSC Move-A-Thon Fundraiser. Patient representatives Katie Farah and Kamna Narin shared personal stories, while experts Dr. Michelle Ramien, Dr. Esther Fuchs, Dr. Darren G. Gregory, and Dr. Elizabeth J. Phillips offered insights on SJS/TEN. The event concluded with a roundtable discussion, a prize draw by Frank Linhart, and closing remarks thanking participants for their contributions to awareness efforts. SJS/TEN & DRESS An in-depth webinar on Stevens-Johnson Syndrome (SJS), Toxic Epidermal Necrolysis (TEN), and Drug Reaction with Eosinophilia and Systemic Symptoms (DRESS). This session brings together medical experts and patient representatives and advocates to explore the clinical presentation, diagnosis, treatment, and long-term impacts of these rare but serious adverse drug reactions. SJS/TEN Research Study
- Newsletter | SJS Canada
Newsletter SJSC Summer 2024 Newsletter Download SJSC 2023 Year-End Newsletter Download SJSC Spring 2024 Newsletter Download
- Research | SJS Canada
Research Dr. O’Reilly and the research team at the University of Limerick are conducting a survey of Stevens-Johnson Syndrome and Toxic Epidermal Necrolysis survivors. T heir research involves two rounds of surveys aiming to developing a Quality of Life (QoL) outcome measure specific for SJS/TEN patients. Existing general QoL outcome measures do not capture the specific experiences of SJS/TEN survivors; this tool may help more clinicians assess SJS/TEN survivors’ quality of life and identify areas of improvement. How to find out more and participate If you would like to learn more about the study or are interested in participating, please contact Professor Pauline O’Reilly at the Department of Nursing and Midwifery, University of Limerick. You can reach her via email at Pauline.OReilly@ul.ie. Click here to access the complete Research Information Sheet by Health Research Board Know more about the research What is the study about? Survivors of Stevens-Johnson Syndrome (SJS) and Toxic Epidermal Necrolysis (TEN) face numerous psychological and physiological challenges that significantly affect their quality of life. Many experience difficulties in returning to work and maintaining relationships. A substantial number, approximately 50%, remain hesitant to take medications even five years after their discharge. Feedback from patients, family caregivers, and clinicians indicates that current general quality of life (QoL) measures do not adequately reflect the unique experiences of SJS/TEN survivors. To address this gap, our project aims to develop and test a specific QoL outcome measure tailored for individuals affected by SJS/TEN, which we have named QoLTEN. We have created a draft version of this measure and would like to invite you to participate in a two-round survey designed to evaluate how effectively QoLTEN captures your quality-of-life experiences. Your input will be invaluable in refining this tool to better serve the needs of SJS/TEN survivors. Who is on the research team? This study is led by Professor Pauline O’Reilly from the Department of Nursing & Midwifery at the University of Limerick. The research team also includes Professors Sarah Walsh, Saskia Ingen Housz-Oro, Chris Bunker, Roni Dodiuk-Gad, Donal Fortune, Ailish Hannigan, and Ms. Sheila Ryan. Together, they are dedicated to advancing our understanding of quality of life for survivors of SJS/TEN. Who can participate? We are inviting adults who had SJS/TEN to take part in the two round online survey. What does it involve? Participants will be invited to take part in a two-round survey, with each round taking approximately 20 minutes to complete. The survey will be conducted online using GDPR-compliant software (Qualtrics). If you consent to participate, you will receive a link to the first survey, which will include the QoLTEN measure along with some additional questionnaires, including a brief demographic survey and two other quality of life assessments. Two weeks later, you will receive another link to repeat the process, allowing us to incorporate any feedback you provided into QoLTEN. The insights gathered from this study will be instrumental in finalizing the development of the QoLTEN measure. If you choose to participate, your name will be entered into a draw for a voucher or gift as a token of appreciation. What are the benefits? We hope that QoLTEN will provide significant benefits to patients diagnosed with SJS or TEN in the future. This initiative represents a practical step towards addressing the unique needs of SJS/TEN patients and has the potential to enhance care by aiding clinicians in assessing their condition and developing appropriate treatment plans. Furthermore, QoLTEN aims to facilitate communication between clinicians and patients, enabling more meaningful discussions about how the condition impacts their lives. What are the risks? There are no known risks associated with this research project. Participation in this study is entirely voluntary. If at any point you decide that you no longer wish to participate, you are free to withdraw without any consequences. Your decision to stop participating will be respected, and there will be no negative repercussions for changing your mind. How will data be protected? The Data Controllers for this study are the University of Limerick, Plassey, Limerick. All information collected from the survey will be kept confidential, with password protection applied to each file on the university’s computer systems. The Principal Investigator will securely store all data, including consent forms. Participants will not have their names attached to any published information; instead, they will be assigned a study ID code. Once the study is completed, all data will be retained for seven years in accordance with the Data Protection Act (2018) and will then be securely erased from electronic sources, including audio files, with any hard copies being shredded. The University of Limerick will not disclose your personal data to any third parties. For more information on Data Protection at the University, please visit www.ul.ie/dataprotection.() You can also reach out to the Data Protection Officer at dataprotection@ul.ie ()or by writing to the Data Protection Officer, Room A1-073, University of Limerick, Limerick. How are the results shared? The data collected from the surveys will be analyzed and compiled by Professor Pauline O’Reilly and the research team. The primary aim of the surveys is to assess how effectively QoLTEN measures your quality-of-life experiences. The findings from this research will be submitted for publication in a peer-reviewed journal. Rest assured, the names of research participants and any identifying details will not be included in any publications. STUDIES ON GENETICS A research titled: – STUDIES ON GENETICS conducted by: Dr. Bruce Carleton Chair, Division of Translational Therapeutics Faculty of Medicine University of British Columbia As per Dr. Carleton, the central theme of his research program, Pharmaceutical Outcomes and Policy Innovations (POPi), is the study of drug therapy with the goal of improving human health and quality of life. He is interested in developing models for evaluating drug effectiveness, medication use models designed to improve patient health, and effective surveillance systems to improve the safe use of medication. He also has an interest in the clinical management of patients who experience serious adverse drug reactions. You can learn more about Dr. Carleton’s research program by emailing him at the email address listed below. FOR DETAILS ABOUT THIS RESEARCH PROJECT: Please email: bcarleton@popi.ubc.ca Survivors and family members of Stevens-Johnson Syndrome & Toxic Epidermal Necrolysis are encouraged to get involved The survey is ready! Dear colleague, As anticipated in our previous email from the COSTEN Project, we are pleased to announce the official launch of Round 1. The participation link is provided at the end of this email. Web-based Delphi questionnaire logistics and timeline The Delphi survey will be conducted using the web-based Welphi platform and will take place in 2-4 rounds, depending on the results of the preceding rounds. The first-round survey is now open from March 5th 2026 until March 20th, 2026, and is expected to take approximately 15 minutes to complete. The questionnaire can be completed over multiple sessions. Should you exit the survey before completion, your responses will be saved automatically, and upon returning, you will be taken back to the point where you left off. All answers and comments will be treated anonymously. Information regarding the second round will be shared with participants in the coming weeks, following analysis of the first-round responses. When accessing the platform, you will be reminded of the objective of this consensus study and provided with clear instructions regarding your participation. Each invited participant will receive a personalized link; please do not share it with others. To participate, please click the following link: app2.welphi.com//Pages/RedirectPage.aspx?sygNY5/UkxN9rAbu09Imn/BG454JHJcpuBHA1luMdc4= For scientific and other questions, please contact us at CostenProject@gmail.com Should you have any technical questions, please contact the Welphi team at Support@welphi.com Thank you very much, Best regards, Prof. Saskia Oro, MD Prof. Roni P. Dodiuk-Gad, MD On behalf of the COSTEN Project
- About | SJS Canada
Circle of Hope Join Our Community of Compassionate Monthly Donors Every day, survivors of Stevens-Johnson Syndrome (SJS) and Toxic Epidermal Necrolysis (TEN) face unimaginable challenges, from the physical scars to the emotional toll of recovery. At SJS Canada, we walk alongside survivors and their families, offering advocacy, awareness, and support when it’s needed most. The Circle of Hope brings together caring individuals like you, people who believe no survivor should face this journey alone. Purpose & Vision The Circle of Hope is SJS Canada’s monthly donor initiative, created to build a strong, compassionate community of supporters who make ongoing impact possible. Your monthly gift helps us: Sustain vital survivor support programs: ensuring individuals and families have a lifeline through their recovery. Advance awareness and advocacy efforts: helping to prevent misdiagnosis and improve patient care. Support education and research: promoting better understanding and early recognition of SJS/TEN. Maintain organizational stability: allowing us to respond quickly when families reach out for help. Why Give Monthly? When you give monthly, you’re not just making a donation, you’re joining a movement of hope, healing, and change. Consistency matters: Your steady support means we can serve survivors every month, not just when one-time donations come in. Impact grows: Even small gifts — $5, $10, $20, or more add up to life-changing support throughout the year. You belong: As part of our Circle of Hope, you’ll receive updates and stories showing how your generosity makes a real difference. Together, we can create a future where every SJS/TEN survivor feels seen, supported, and empowered. Give Monthly to Circle of Hope What Your Monthly Gift Can Do Your monthly contribution, no matter the size, directly fuels SJS Canada’s programs and outreach: $5/month – Helps provide printed resources and survivor guides to newly diagnosed individuals and their families. $10/month – Supports outreach and education initiatives to raise awareness among healthcare professionals and the public. $20/month – Contributes to survivor peer support programs, ensuring no one faces recovery alone. $50/month – Helps fund advocacy and policy efforts to improve patient care and systemic awareness of SJS/TEN. $100/month and above – Strengthens the long-term sustainability of SJS Canada’s national programs and emergency response initiatives. Every contribution builds a stronger, more compassionate network of care and awareness across Canada. Join the Circle of Hope Today Your commitment gives hope that lasts all year long. Click below to become a Monthly Donor and make your impact today. Donate Now Let’s Work Together Get in touch so we can start working together. First Name Last Name Email Message Send Thanks for submitting!
- Make a Donation | SJS Canada
Ways to Donate Thank you for your support! Your donation will greatly assist us . During the past few years, the pandemic impacted some of our programs, however, we were able to pivot to online and virtual meeting spaces! This has given rise to a series of Town Hall meetings featuring guest speakers and medical professionals, SJS/TEN conferences, public speaking engagements, and other virtual events, including our annual SJS virtual fundraising concerts! Our monthly survivors' support group meets online and co-hosts counselling workshops. Over the next 5 years, we are aiming to expand on these services and incorporate new ones to further the support, assistance, and education of Stevens-Johnson Syndrome and Toxic Epidermal Necrolysis. No one should have to journey through this alone; we are stronger together! Your donations will help us to continue the important work of supporting survivors and caregivers, as well as to promote awareness and education of these rare skin diseases. CanadaHelps CanadaHelps accepts donations on behalf of SJS Canada. You can give online from anywhere in Canada, and your contribution will go directly toward supporting SJS Canada’s mission. CanadaHelps handles all the details — from secure donation processing to tax‑receipting — so you don’t have to. Once your donation is processed, you’ll receive a tax receipt via email, helping you maximize your tax credits while making a meaningful impact. Donate on CanadaHelps E-Transfer You can now support SJS Canada directly by sending an Interac e-Transfer from your bank account. It's a quick, secure, and cost-effective way to give. 100% of your donation goes to SJS Canada — with no processing fees — helping to maximize the impact of your gift. To donate via e-Transfer, simply: Send your donation to: donations@sjscanada.org In the message or notes section, include your name and email address, so we can be in contact with you. Your generous contribution helps support the ongoing work of SJS Canada — thank you for your support! Donate a Car Canada accepts vehicle donations for SJS Canada. Free towing is provided in most areas across Canada, or you can drop off your vehicle to maximize your donation. When you donate your car, truck, RV, boat, or motorcycle to SJS Canada, it will either be recycled or re-sold (depending on its condition, age and location). Donate a Car Canada will look after all the details to make it easy for SJS Canada to benefit. You will receive a tax receipt after your donation has been processed! Car Donation: SJS Canada is partnering with Donate a Car Canada to accept your car donation! You will be provided free towing, or you can drop off your vehicle to maximize your donation. When you donate your car, truck, RV, boat, or motorcycle to SJS Canada through Donate A Car Canada, it will either be recycled or re-sold (depending on its condition, age and location). Donate a Car Canada will look after all the details to make it easy for SJS Canada to benefit. You will receive a tax receipt after your car donation has been processed! Vehicle Donation: SJS Canada is partnered with Donate a Car Canada to accept your vehicle donation! You will be provided free towing, or you can drop off your vehicle to maximize your donation. When you donate your car, truck, RV, boat, or motorcycle to SJS Canada through Donate A Car Canada, it will either be recycled or re-sold (depending on its condition, age and location). Donate a Car Canada will look after all the details to make it easy for SJS Canada to benefit. You will receive a tax receipt after your vehicle donation has been processed! Junk Car: Your junk car can help SJS Canada! We have partnered with Donate a Car Canada to accept your car donation. You will be provided free towing, or you can drop off your vehicle to maximize your donation. When you donate your car, truck, RV, boat, or motorcycle to SJS Canada through Donate A Car Canada, it will either be recycled or re-sold (depending on its condition, age and location). Your vehicle may not be a junk car, and they can help with that, too! Donate a Car Canada will look after all the details to make it easy for SJS Canada to benefit. You will receive a tax receipt after your vehicle donation has been processed! Car Removal: Looking for simple and free car removal? SJS Canada is partnering with Donate a Car Canada to accept your car donation! You will be provided free towing, or you can drop off your vehicle to maximize your donation. When you donate your car, truck, RV, boat, or motorcycle to SJS Canada through Donate A Car Canada, it will either be recycled or sold at auction (depending on its condition, age and location). Donate a Car Canada will look after all the details, from car removal to the disbursal of your gift, making it easy for you and SJS Canada to benefit. You will receive a tax receipt after your vehicle donation has been processed! Donate a Car Donate a Car Canada accepts Vehicle Donations for SJS Canada. Donate Your Car Here
- Survivor Handbook | SJS Canada
SJS/TEN Canada Survivors' Handbook Download Handbook PDF
- Testimonials | SJS Canada
Testimonials I am now part of a group of survivors from many places who zoom and talk, email, and encourage and support each other on a regular basis. It is a valuable asset in my post SJS overlapping TEN day-to-day feel-good moments, a place to gather knowledge, ask questions, and listen to others. Peace and love. ✌️🌸 Jane G. I experienced Stevens-Johnson Syndrome (SJS) in March 2005. I discovered Sonia’s ‘SJS Canada Support Group’ in 2020. SJS is scary, and the long-term symptoms af fect victims diff erently. For me, it’s mostly been an ongoing difficulty with my eyes. Many victims experience SJS much more intensely. SJS Can is a place for survivors and/or guardians to be heard, ask questions, share experiences, and feel safe. It reminds us we’re not alone in this fight and that brighter days are ahead. I greatly appreciate the availability and consistency of Sonia’s group. I respect and am grateful for the work Sonia puts into moving the group and thus SJS awareness forward. Sonia is an example of professionalism and commitment and I really appreciate the community and fellowship her group offers. Jeremy F. My name is YC and I experienced Steven's Johnson's Syndrome (SJS) in November 2019. I discovered Sonia’s ‘SJS Canada Support group in 2021. When I was first diagnosed with SJS, I thought it was something short term and that I would be able to fully recover and resume my life as normally as before. I soon realized that I may be dealing with long term/permanent issues. SJS Canada support group has helped me cope with my diagnosis and have provided valuable information pertaining to treatment and advice. It has been wonderful getting to know the members of the group and hearing their stories. Sonia’s efforts in organizing the meetings and finding guest speakers are greatly appreciated. YC In 2014 at the age of 52 I was hospitalized due to an allergic reaction to a medication which caused my immune system to go out of control and ultimately diagnosed as Stevens Johnson Syndrome. It was so bad that I was not expected to survive but with excellent medical intervention and a brilliant ophthalmologist and surgeries, 7 years later I still have my vision although the trauma of SJS will always be there. I'm grateful for all the support I have received from the SJS TENS Grp of Canada and the information they continually provide. It's a very rare disease and can be life threatening but I am proof that it can be beaten. Paul RG I have learned so much about the SJSCA Support group. I was very hurt learning about the ordeal the founder, my friend and former classmates Sonia Crossdale went through. Mrs Crossdale a strong woman of God be bless and continue the fight in Jesus's name. Marlene A. Hi Sonia, one thing I have learned through this journey is that Angels are all around us. You may not see them but they show themselves when needed. Thank you for all you have done. Dennis P.
- SJS Awareness Month Town Hall | SJS Canada
Thu, Aug 29 | Zoom Town Hall SJS Awareness Month Town Hall Register now Time & Location Aug 29, 2024, 7:30 PM – 9:00 PM Zoom Town Hall Guests + 13 other guests Register now Share this event
- Blog | SJS Canada
All Posts Homepage Features News and Updates Image Gallery Research Support Survivor Stories Updates Upcoming Events Volunteers Events Felipe Simoes Cayres Apr 1 3 min SJS Awareness Month Challenges | This is how you can join the fight. During August, we have some challenges you can join to support us in our fight. Check it out. August 3rd Sunglasses Day Challenge:... 14 views 0 comments 1 like. Post not marked as liked 1 hiep725 Feb 8 1 min Memorial Video 1 https://youtu.be/_j3UWsEb5bM 8 views 0 comments 1 like. Post not marked as liked 1 hiep725 Jan 29 1 min Memorial Video 2: In Loving Memory https://youtu.be/rocX38HOUjE 16 views 0 comments 1 like. Post not marked as liked 1 sjsandtensgroupcan Oct 13, 2021 1 min Supportive Counselling & Education for survivors, families and friends. Attention SJS survivors & care supporters Coming winter 2024 : to secure your spot Email: info@sjscanada.org Our FREE four weeks... 37 views 0 comments 1 like. Post not marked as liked 1 sjsandtensgroupcan Sep 20, 2021 1 min Julie’s story Meet Julie who miraculously survived SJS/TEN, not once but twice. With the help of her supportive mother Jean, Julie now uses her story... 115 views 0 comments 1 like. Post not marked as liked 1 sjsandtensgroupcan Aug 1, 2021 2 min YC’s story I was a completely healthy individual until I got the flu vaccine in October 2019. I was tired and a little achy the next couple of days... 76 views 0 comments 1 like. Post not marked as liked 1 sjsandtensgroupcan Aug 1, 2021 2 min Jeremy’s story I had a bacterial infection in 2005. After 13 days of taking antibiotics, I developed a lot of bumps on my body, my face swelled up, my... 61 views 0 comments 1 like. Post not marked as liked 1 sjsandtensgroupcan Mar 16, 2021 4 min Kathleen’s story My name is Kathleen, and I am from Washington, USA, just north of Portland, Oregon. I had my first reaction to Steven Johnson Syndrome... 61 views 0 comments 1 like. Post not marked as liked 1 sjsandtensgroupcan Mar 16, 2021 3 min Anastasia’s Story I was diagnosed with TEN in early 2016 when I was 28 years old. I was 5th grade teacher at the time, I loved hiking and bike riding, and... 29 views 0 comments 1 like. Post not marked as liked 1 sjsandtensgroupcan Feb 12, 2021 1 min SJS Canada founder Featured on Toronto’s The Scoop SJS Founder, Sonia Whyte-Croasdaile was featured on Toronto’s news and entertainment show, The Scoop. Sonia took the liberty to help... 15 views 0 comments 1 like. Post not marked as liked 1 sjsandtensgroupcan Aug 17, 2020 5 min Jane’s story IT’S TROUBLING TIMES WHEN THE SOLUTION BECOMES THE PROBLEM………. My name is Jane Grady and I’m an SJS/TEN survivor. I was prescribed a... 38 views 0 comments Post not marked as liked sjsandtensgroupcan Aug 12, 2020 1 min AUGUST is Stevens-Johnson Syndrome Awareness month The month of August is Stevens Johnson Syndrome Awareness Month in the USA. We wish to join our allies and combine our voices to spread... 14 views 0 comments 1 like. Post not marked as liked 1 sjsandtensgroupcan Aug 4, 2020 5 min Jennifer’s Story My name is Jennifer Lane. I have just turned 48, and this is my SJS/Ten story. It all started on August 1, 2017. I was in Clear Lane, MB... 37 views 0 comments Post not marked as liked sjsandtensgroupcan May 31, 2020 1 min STUDIES ON GENETICS A Research titled: – STUDIES ON GENETICS is currently been conducted by: Dr. Bruce Carleton Chair, Division of Translational... 21 views 0 comments Post not marked as liked sjsandtensgroupcan Feb 25, 2020 2 min Bruce’s Story Late February 2005, I developed symptoms of fever, headache, and nasal congestion. To alleviate my symptoms, I decided to take different... 51 views 0 comments Post not marked as liked sjsandtensgroupcan Feb 24, 2019 1 min SJS Annual General Meeting Thank you to everyone who joined us for our AGM in May Below are some images from the event! Photos of our 2018 Annual General Meeting 15 views 0 comments Post not marked as liked sjsandtensgroupcan Feb 23, 2019 2 min Kim’s Story The impact of Stevens Johnson Syndrome affects each victim differently depending on the severity and duration of the illness. Here’s one... 51 views 0 comments Post not marked as liked sjsandtensgroupcan Mar 2, 2018 1 min The Lonely Path To Recovery Stevens-Johnson Syndrome (SJS) and Toxic Epidermal Necrolysis (TEN) represent different degrees of a severe, acute, life-threatening... 17 views 0 comments Post not marked as liked


