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Global SJS Awareness Month: August August – A Month of Awareness, Advocacy, and Action Every August, SJS Canada joins organizations and individuals around the world to recognize Global Stevens-Johnson Syndrome (SJS) Awareness Month. A time dedicated to shining a light on Stevens-Johnson Syndrome (SJS) and Toxic Epidermal Necrolysis (TEN). These rare but severe reactions, most often triggered by medications, can be life-threatening and leave survivors with long-term physical and emotional impacts. Why Awareness Matters Early recognition of symptoms is critical to improving outcomes. Increased awareness among the public and healthcare professionals can lead to faster diagnosis, better treatment, and fewer preventable cases. By educating others, we can help save lives and reduce suffering. Our Goals During Awareness Month Educate about the signs, risks, and long-term effects of SJS/TEN Empower survivors and families to share their stories and connect with others Advocate for safer prescribing practices and stronger patient protections Engage communities through events, campaigns, and social media outreach How You Can Get Involved Join our events – including our annual Virtual SJS/TEN Educational Webinar and Move/Walk/Run happening mid to late summer Share your story – Survivor voices bring powerful awareness and connection Spread the word on social media using our downloadable graphics and hashtags Attend our Canada Day booth at Lion’s Park in Brantford (July 1st) to kick off the conversation early Support our Membership Drive – Help us grow and sustain our work year-round Together, We Are Stronger SJS Awareness Month is not just about information—it’s about community, compassion, and action. Whether you're a survivor, caregiver, healthcare professional, or supporter, your voice SJS Awareness Month Activities | This is how you can join the fight. We have some activities during August that you can join to support us in our fight. Check them out.

Upcoming Events Multiple Dates Elpizo Counseling Tue, Nov 25 Zoom Meeting More info RSVP December Benefits Concert Sun, Dec 07 Virtual Zoom Event More info RSVP Save the Date Christmas Concert Sun, Dec 07 Zoom More info Details Multiple Dates SJSC Support Group Wed, Dec 17 Virtual Zoom online Conference More info RSVP Events Calendar November 2025 Today Mon Tue Wed Thu Fri Sat Sun 27 28 29 30 31 1 2 3 4 6:00 PM Elpizo Counseling +1 more 5 6 7 8 9 10 11 6:00 PM Elpizo Counseling +1 more 12 13 14 15 16 17 18 6:00 PM Elpizo Counseling +1 more 19 3:30 PM SJSC Support Group With Bruce Carleton +1 more 20 21 22 23 24 25 6:00 PM Elpizo Counseling +1 more 26 27 28 29 30 1 2 6:00 PM Elpizo Counseling +1 more 3 4 5 6 7 6:00 PM December Benefits Concert +1 more +2 more Past Events Multiple Dates Wed, Nov 19 SJSC Support Group With Bruce Carleton / Virtual Zoom online Conference Details Nov 19, 2025, 3:30 PM – 4:30 PM EST Virtual Zoom online Conference +14 more Multiple Dates Tue, Nov 18 Elpizo Counseling / Zoom Meeting Details Nov 18, 2025, 6:00 PM – 7:30 PM Zoom Meeting +5 more Thu, Aug 28 SJS Webinar- Global Connections / Online: Virtual Zoom online Conference Details Aug 28, 2025, 7:00 PM – 9:00 PM Online: Virtual Zoom online Conference +22 more Fri, Aug 15 SJS Virtual Move-A-Thon / Zoom Details Aug 15, 2025, 7:00 AM – Aug 17, 2025, 11:00 PM Zoom Join Us for the SJS/TEN Awareness Virtual Walk-a-Thon See All Mon, May 05 Annual General Meeting (AGM) 2025 / Zoom Meeting Details May 05, 2025, 6:30 PM – 8:00 PM EDT Zoom Meeting +28 more Multiple Dates Wed, Apr 09 Elpizo Counseling / Zoom Details Apr 09, 2025, 6:00 PM – 7:30 PM EDT Zoom Tue, Feb 25 SJS Canada February Webinar / Zoom Details Feb 25, 2025, 7:00 PM – 9:00 PM Zoom +70 more Wed, Jan 15 SJSC Support Group / https://us02web.zoom.us/j/82137370516?pwd=W Details Jan 15, 2025, 3:30 PM – 4:30 PM https://us02web.zoom.us/j/82137370516?pwd=W See All Multiple Dates Wed, Dec 18 SJSC Support Group / https://us02web.zoom.us/j/82137370516?pwd=W Details Dec 18, 2024, 3:30 PM – 4:30 PM https://us02web.zoom.us/j/82137370516?pwd=W Sun, Dec 08 Season of Hope Benefit Event / Virtual Zoom Event Details Dec 08, 2024, 6:00 PM – 8:30 PM EST Virtual Zoom Event Join us for an unforgettable night of live performances, fun and entertainment at the Season of Hope Benefit. +14 more Multiple Dates Wed, Dec 04 ElPizo Counseling / https://2ly.link/20Ymj Details Dec 04, 2024, 6:00 PM – 7:30 PM EST https://2ly.link/20Ymj Thu, Aug 29 SJS Awareness Month Town Hall / Zoom Town Hall Details Aug 29, 2024, 7:30 PM – 9:00 PM Zoom Town Hall +26 more Thu, Jul 11 Games Night - Virtual Edition / ZOOM Details Jul 11, 2024, 6:00 PM – 8:30 PM ZOOM Mon, Jul 01 SJSC Canada Day Booth | Free Event / Brantford Details Jul 01, 2024, 10:00 AM – 10:00 PM Brantford, Brantford, ON, Canada Thu, Jun 20 Game Night - Virtual Edition / ZOOM Details Jun 20, 2024, 6:00 PM – 8:30 PM ZOOM Sun, May 05 Annual General Meeting (AGM) / Zoom Meeting Details May 05, 2024, 3:30 PM – 5:00 PM EDT Zoom Meeting +19 more Thu, Apr 18 ElPizo Counseling / https://us02web.zoom.us/j/82137370516?pwd=W Details Apr 18, 2024, 6:30 PM – 7:30 PM EDT https://us02web.zoom.us/j/82137370516?pwd=W Thu, Apr 11 ElPizo Counseling / https://us02web.zoom.us/j/82137370516?pwd=W Details Apr 11, 2024, 6:30 PM – 7:30 PM EDT https://us02web.zoom.us/j/82137370516?pwd=W Load More We Need Your Support Today! Donate

Ways to Donate Thank you for your support! Your donation will greatly assist us . During the past few years, the pandemic impacted some of our programs, however, we were able to pivot to online and virtual meeting spaces! This has given rise to a series of Town Hall meetings featuring guest speakers and medical professionals, SJS/TEN conferences, public speaking engagements, and other virtual events, including our annual SJS virtual fundraising concerts! Our monthly survivors' support group meets online and co-hosts counselling workshops. Over the next 5 years, we are aiming to expand on these services and incorporate new ones to further the support, assistance, and education of Stevens-Johnson Syndrome and Toxic Epidermal Necrolysis. No one should have to journey through this alone; we are stronger together! Your donations will help us to continue the important work of supporting survivors and caregivers, as well as to promote awareness and education of these rare skin diseases. CanadaHelps CanadaHelps accepts donations on behalf of SJS Canada. You can give online from anywhere in Canada, and your contribution will go directly toward supporting SJS Canada’s mission. CanadaHelps handles all the details — from secure donation processing to tax‑receipting — so you don’t have to. Once your donation is processed, you’ll receive a tax receipt via email, helping you maximize your tax credits while making a meaningful impact. Donate on CanadaHelps E-Transfer You can now support SJS Canada directly by sending an Interac e-Transfer from your bank account. It's a quick, secure, and cost-effective way to give. 100% of your donation goes to SJS Canada — with no processing fees — helping to maximize the impact of your gift. To donate via e-Transfer, simply: Send your donation to: donations@sjscanada.org In the message or notes section, include your name and email address, so we can be in contact with you. Your generous contribution helps support the ongoing work of SJS Canada — thank you for your support! Donate a Car Canada accepts vehicle donations for SJS Canada. Free towing is provided in most areas across Canada, or you can drop off your vehicle to maximize your donation. When you donate your car, truck, RV, boat, or motorcycle to SJS Canada, it will either be recycled or re-sold (depending on its condition, age and location). Donate a Car Canada will look after all the details to make it easy for SJS Canada to benefit. You will receive a tax receipt after your donation has been processed! Car Donation: SJS Canada is partnering with Donate a Car Canada to accept your car donation! You will be provided free towing, or you can drop off your vehicle to maximize your donation. When you donate your car, truck, RV, boat, or motorcycle to SJS Canada through Donate A Car Canada, it will either be recycled or re-sold (depending on its condition, age and location). Donate a Car Canada will look after all the details to make it easy for SJS Canada to benefit. You will receive a tax receipt after your car donation has been processed! Vehicle Donation: SJS Canada is partnered with Donate a Car Canada to accept your vehicle donation! You will be provided free towing, or you can drop off your vehicle to maximize your donation. When you donate your car, truck, RV, boat, or motorcycle to SJS Canada through Donate A Car Canada, it will either be recycled or re-sold (depending on its condition, age and location). Donate a Car Canada will look after all the details to make it easy for SJS Canada to benefit. You will receive a tax receipt after your vehicle donation has been processed! Junk Car: Your junk car can help SJS Canada! We have partnered with Donate a Car Canada to accept your car donation. You will be provided free towing, or you can drop off your vehicle to maximize your donation. When you donate your car, truck, RV, boat, or motorcycle to SJS Canada through Donate A Car Canada, it will either be recycled or re-sold (depending on its condition, age and location). Your vehicle may not be a junk car, and they can help with that, too! Donate a Car Canada will look after all the details to make it easy for SJS Canada to benefit. You will receive a tax receipt after your vehicle donation has been processed! Car Removal: Looking for simple and free car removal? SJS Canada is partnering with Donate a Car Canada to accept your car donation! You will be provided free towing, or you can drop off your vehicle to maximize your donation. When you donate your car, truck, RV, boat, or motorcycle to SJS Canada through Donate A Car Canada, it will either be recycled or sold at auction (depending on its condition, age and location). Donate a Car Canada will look after all the details, from car removal to the disbursal of your gift, making it easy for you and SJS Canada to benefit. You will receive a tax receipt after your vehicle donation has been processed! Donate a Car Donate a Car Canada accepts Vehicle Donations for SJS Canada. Donate Your Car Here

Find a Doctor Do you need help finding an SJS/TEN Doctor In your area? We can help you! Send us a message and we’ll get back to you shortly. First name Phone Email Location Your message Send Thanks for submitting! We'll contact you shortly. Are you a Doctor? Full Name Email Code Phone Speciality Location Your message Send Thanks for submitting! We'll contact you shortly. Do you want to register to be in our SJS/TEN Doctor's referral list? Register here.

Meet The Team Founder/President Founder & President Sonia Whyte-Croasdaile Sonia Whyte-Croasdaile RPN, RSW is a wife, mother, nurse, Registered Social Worker, a trained Relaxation/Life Coach, and the Founder and President of Stevens-Johnson Syndrome Canada. She is experienced in ... Read More Board of Directors Co-Chair Sanjay Kumar Sanjay Kumar is a Sariel Entpreneure. His expertise includes Digital Marketing, IT Consulting Services, and Managing cross-functional teams. Sanjay helps enterprises ... Read More Board Member | Medical Advisor Dr. Bruce Carleton Dr. Bruce Carleton has over 30 years of experience in clinical pharmacology and investigating the safety and effectiveness of drugs used in both children and adults. He is the founder and CEO... Read More Board Member Sonia Bromfield-Cornish TBA Read More Member at Large/Secretary Coleen Lambert Coleen Lambert is a licenced Financial Broker and Coach. Prior to building her own Financial Services and Financial Coaching company in 2020, Coleen worked as a Legal Professional for more than 16 years in various areas... Read More Board Member Phatay Waraich Phatay is a Vendor Manager with TD Bank within the technology team. He has had various roles within the financial industry from procurement and third party risk management to... Read More Patient Representative Jeremy Falk My name is Jeremy Falk and I live in Los Angeles. In 2005 I had a bacteria staph infection. After taking two weeks of a 21-day supply of Bactrim (a Sulfa-based antibiotic), my eyes and throat started to feel inflamed and irritated. I went to ... Read More Board Member Dr. Michele Ramien Dr. Ramien is a hospital-based academic dermatologist at the Alberta Children’s Hospital who is board-certified in both Canada and the United States. A first-generation... Read More Medical Advisors Dr. Bruce Carleton PharmD, FCP, FISPE Dr. Bruce Carleton has over 30 years of experience in clinical pharmacology and investigating the safety and effectiveness of drugs used in both children and adults. He is the founder and CEO... Professor and Chair Division of Translational Therapeutics, Department of Pediatrics Faculty of Medicine University of British Columbia Director Pharmaceutical Outcomes Programme BC Children’s Hospital Senior Clinician Scientist BC Children’s Hospital Research Institute Vancouver Read More Dr. Seema Mane-Kndvilkar TBA TBA Read More Dr. Elizabeth J. Phillips MD, FRCPC, FRACP, FIDSA, FAAAAI Dr. Elizabeth Phillips is a physician-scientist clinically trained in infectious diseases, immunology, and clinical pharmacology who has established new clinical and research programs in drug hypersensitivity... Professor of Medicine, Dermatology, Pathology, Microbiology, and Immunology John A. Oates Chair in Clinical Research Director, Center for Drug Safety and Immunology Director, Personalized Immunology, John A. Oates Institute for Experimental Therapeutics Vanderbilt University Medical Center Professor of Pharmacology Vanderbilt University School of Medicine Read More Coordinators Francene Francis Administrative Assistant to the President Francene has served in this capacity since 2022. She has a personal stake in the organization as a close family member has persevered and survived the onslaught of the illnesses and still continues to live with the aftereffects. Alongside the President, Francene is responsible for overseeing the daily operations of the organization and ensuring that the President's visions for SJS Canada are carried out to the best of our volunteer capacity. Felipe Cayres Web Developer and Team Lead Manage web development at SJS Canada. Lead a team, ensure compliance, and improve user experience. Using technology for better health outcomes. Kevin Kim Patient Support Coordinator Since March 2023, he has been organizing monthly support group meetings for SJS/TEN survivors and loved ones affected. He also organizes expert guest speakers who present on, and answer questions about, the long-term challenges faced by the patient support group members. He has also spearheaded writing and producing a SJS/TEN Patient Handbook with input from SJS survivor and experts in the field. He hopes to continue expanding the role of Patient Support Coordinator. Outside of SJS Canada, Kevin is a MD/PhD student at McMaster University, Hamilton, Ontario aspiring to be a physician-scientist caring for those affected by complex dermatologic conditions and improving their care. Aria Momand Fundraising Coordinator TBA Farzan Rezayati Ajibisheh Marketing and Communications Coordinator TBA Tyanna Supreme Grant Team Coordinator She is a PhD candidate in Molecular Genetics at the University of Toronto. As part of the grant writing team, she brings a strong scientific foundation to help SJS Canada secure more funding to better support the community. Tyanna is deeply passionate about mentorship and volunteer work, particularly in Black spaces, where she strives to foster empowerment and connection. She is committed to continuing her learning about Stevens-Johnson Syndrome and raising greater awareness of the disease. Advisory Committee Karen Worthy PhD, MPH, RN, CNE Dr. Karen Worthy is an Associate Professor at the University of South Carolina College of Nursing. Dr. Worthy has a 26-year history in professional nursing and has been a nurse educator for 17 years. She received... Read More Vincent Cornish Vincent Cornish, FICB. Vincent is a “Fellow of the Institute of Canadian Bankers”. He obtained his FICB designation through extensive studies at: York University, TMU (Toronto Metropolitan University – formally Ryerson University)... Read More Lorna Baker Lorna has been a Registered Nurse since 1996 and served as a Community Health Nurse from 1997 to 2010. Following this, she held the position of Certified Diabetes Educator at Unison Health and Community Services from... Read More

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Thu, Aug 29 | Zoom Town Hall SJS Awareness Month Town Hall Register now Time & Location Aug 29, 2024, 7:30 PM – 9:00 PM Zoom Town Hall Guests + 13 other guests Register now Share this event

All Posts Homepage Features News and Updates Image Gallery Research Support Survivor Stories Updates Upcoming Events Volunteers Events Felipe Simoes Cayres Apr 1 3 min SJS Awareness Month Challenges | This is how you can join the fight. During August, we have some challenges you can join to support us in our fight. Check it out. August 3rd Sunglasses Day Challenge:... 14 views 0 comments 1 like. Post not marked as liked 1 hiep725 Feb 8 1 min Memorial Video 1 https://youtu.be/_j3UWsEb5bM 8 views 0 comments 1 like. Post not marked as liked 1 hiep725 Jan 29 1 min Memorial Video 2: In Loving Memory https://youtu.be/rocX38HOUjE 16 views 0 comments 1 like. Post not marked as liked 1 sjsandtensgroupcan Oct 13, 2021 1 min Supportive Counselling & Education for survivors, families and friends. Attention SJS survivors & care supporters Coming winter 2024 : to secure your spot Email: info@sjscanada.org Our FREE four weeks... 37 views 0 comments 1 like. Post not marked as liked 1 sjsandtensgroupcan Sep 20, 2021 1 min Julie’s story Meet Julie who miraculously survived SJS/TEN, not once but twice. With the help of her supportive mother Jean, Julie now uses her story... 115 views 0 comments 1 like. Post not marked as liked 1 sjsandtensgroupcan Aug 1, 2021 2 min YC’s story I was a completely healthy individual until I got the flu vaccine in October 2019. I was tired and a little achy the next couple of days... 76 views 0 comments 1 like. Post not marked as liked 1 sjsandtensgroupcan Aug 1, 2021 2 min Jeremy’s story I had a bacterial infection in 2005. After 13 days of taking antibiotics, I developed a lot of bumps on my body, my face swelled up, my... 61 views 0 comments 1 like. Post not marked as liked 1 sjsandtensgroupcan Mar 16, 2021 4 min Kathleen’s story My name is Kathleen, and I am from Washington, USA, just north of Portland, Oregon. I had my first reaction to Steven Johnson Syndrome... 61 views 0 comments 1 like. Post not marked as liked 1 sjsandtensgroupcan Mar 16, 2021 3 min Anastasia’s Story I was diagnosed with TEN in early 2016 when I was 28 years old. I was 5th grade teacher at the time, I loved hiking and bike riding, and... 29 views 0 comments 1 like. Post not marked as liked 1 sjsandtensgroupcan Feb 12, 2021 1 min SJS Canada founder Featured on Toronto’s The Scoop SJS Founder, Sonia Whyte-Croasdaile was featured on Toronto’s news and entertainment show, The Scoop. Sonia took the liberty to help... 15 views 0 comments 1 like. Post not marked as liked 1 sjsandtensgroupcan Aug 17, 2020 5 min Jane’s story IT’S TROUBLING TIMES WHEN THE SOLUTION BECOMES THE PROBLEM………. My name is Jane Grady and I’m an SJS/TEN survivor. I was prescribed a... 38 views 0 comments Post not marked as liked sjsandtensgroupcan Aug 12, 2020 1 min AUGUST is Stevens-Johnson Syndrome Awareness month The month of August is Stevens Johnson Syndrome Awareness Month in the USA. We wish to join our allies and combine our voices to spread... 14 views 0 comments 1 like. Post not marked as liked 1 sjsandtensgroupcan Aug 4, 2020 5 min Jennifer’s Story My name is Jennifer Lane. I have just turned 48, and this is my SJS/Ten story. It all started on August 1, 2017. I was in Clear Lane, MB... 37 views 0 comments Post not marked as liked sjsandtensgroupcan May 31, 2020 1 min STUDIES ON GENETICS A Research titled: – STUDIES ON GENETICS is currently been conducted by: Dr. Bruce Carleton Chair, Division of Translational... 21 views 0 comments Post not marked as liked sjsandtensgroupcan Feb 25, 2020 2 min Bruce’s Story Late February 2005, I developed symptoms of fever, headache, and nasal congestion. To alleviate my symptoms, I decided to take different... 51 views 0 comments Post not marked as liked sjsandtensgroupcan Feb 24, 2019 1 min SJS Annual General Meeting Thank you to everyone who joined us for our AGM in May Below are some images from the event! Photos of our 2018 Annual General Meeting 15 views 0 comments Post not marked as liked sjsandtensgroupcan Feb 23, 2019 2 min Kim’s Story The impact of Stevens Johnson Syndrome affects each victim differently depending on the severity and duration of the illness. Here’s one... 51 views 0 comments Post not marked as liked sjsandtensgroupcan Mar 2, 2018 1 min The Lonely Path To Recovery Stevens-Johnson Syndrome (SJS) and Toxic Epidermal Necrolysis (TEN) represent different degrees of a severe, acute, life-threatening... 17 views 0 comments Post not marked as liked