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The Unseen Emergency: Understanding Ocular Involvement in SJS/TEN
When we talk about Stevens-Johnson Syndrome (SJS) and Toxic Epidermal Necrolysis (TEN), the immediate focus is often on the severe and visible impact on the skin. However, SJS/TEN is a mucocutaneous condition, meaning it attacks the mucous membranes just as aggressively. For up to 80% of patients, the eyes are directly on the front lines of this immune response. Because SJS/TEN is incredibly rare, bringing awareness to the different clinical topics within the disease is ess

Aziz Ghafoor & Kimia Ameri
Mar 273 min read


When a Rare Disease Is Missed: Misdiagnosis of Stevens–Johnson Syndrome and Why It Matters
Stevens–Johnson Syndrome (SJS) and Toxic Epidermal Necrolysis (TEN) are rare, life-threatening reactions, most often triggered by medications. Despite their severity, early SJS/TEN is frequently misdiagnosed, delaying withdrawal of the offending drug and appropriate care. For a condition where hours and days matter, misrecognition can significantly worsen outcomes. As we recognize Rare Disease Month, it is important to examine why SJS/TEN is so often missed, what it is common

Aziz Ghafoor & Kimia Ameri
Feb 183 min read


Fueling the Fight: Nutrition and Physical Recovery After SJS/TEN
Recovery from Stevens–Johnson Syndrome (SJS) and Toxic Epidermal Necrolysis (TEN) does not end when the skin stops blistering. For many survivors, the weeks and months after hospitalization are defined by rebuilding strength, healing wounds, and restoring physical function. Two pillars of this recovery, nutrition and physical rehabilitation, are often under-discussed, yet they are central to healing. This post explores what research and clinical guidance tell us about how f

Aziz Ghafoor & Kimia Ameri
Jan 84 min read


Prevention Starts with Awareness: Reducing the Risk of Severe Drug Reactions
Every October, Canadian Patient Safety Week reminds us of the importance of preventing harm before it happens. For rare but serious conditions like Stevens–Johnson Syndrome (SJS) and Toxic Epidermal Necrolysis (TEN), prevention means reducing risk for everyone: by improving drug safety, recognizing early signs, and responding quickly when reactions occur. While we cannot always predict who will develop them, greater awareness can help reduce the risk. Understanding the Risk

Aziz Ghafoor & Kimia Ameri
Nov 18, 20253 min read


Recognizing and Addressing SJS/TEN in Skin of Color
Stevens–Johnson yndrome (SJS) and toxic epidermal necrolysis (TEN) are rare, life-threatening skin reactions that can affect anyone....

Aziz Ghafoor & Kimia Ameri
Oct 9, 20252 min read


August Is Global SJS Awareness Month: The Power of Awareness and What You ShouldKnow
Stevens–Johnson Syndrome (SJS) and Toxic Epidermal Necrolysis (TEN) are rare but devastating drug reactions that can quickly escalate...
sjsandtensgroupcan
Aug 14, 20253 min read


Dr. Karen Worthy Story
Stronger Than the Storm of SJS/TEN: A Nurse Educator’s Survival, Faith, and Renewal Karen Worthy, Ph.D., MPH, RN, CNE, CNEcl University...
sjsandtensgroupcan
Jul 24, 20257 min read


The Role of a Multidisciplinary Team in SJS/TEN Care
Stevens-Johnson Syndrome (SJS) and Toxic Epidermal Necrolysis (TEN) are rare but extremely serious conditions often triggered by...

Aziz Ghafoor & Kimia Ameri
Jul 22, 20253 min read


SJS vs. TEN: What’s the Difference and Why It Matters
Stevens–Johnson Syndrome (SJS) and Toxic Epidermal Necrolysis (TEN) are two names you may have seen used together, and for good reason....

Aziz Ghafoor & Kimia Ameri
Jul 8, 20253 min read


Mental Health Awareness: The Psychological Impact of Surviving SJS/TEN
Most people have never heard of Stevens–Johnson Syndrome (SJS) or Toxic Epidermal Necrolysis (TEN). These are rare but very serious skin...

Aziz Ghafoor & Kimia Ameri
May 9, 20252 min read


Life After SJS/TEN: What Recovery Really Looks Like
Stevens-Johnson Syndrome (SJS) and Toxic Epidermal Necrolysis (TEN) are rare but severe conditions that affect many parts of the body...

Aziz Ghafoor & Kimia Ameri
May 4, 20253 min read


Understanding Stevens-Johnson Syndrome in Children
Stevens-Johnson Syndrome (SJS) is a rare but serious medical condition that primarily affects the skin and mucous membranes. While SJS...

Aziz Ghafoor & Kimia Ameri
Mar 16, 20253 min read


Shining a Light on SJS/TEN: Recognizing Rare Disease Month
Every February, Rare Disease Month brings attention to conditions that affect only a small percentage of the population. Although these...

Aziz Ghafoor & Kimia Ameri
Feb 17, 20254 min read


Understanding Stevens-Johnson Syndrome: Causes, Symptoms, and Risks
What Exactly is Stevens-Johnson Syndrome? Stevens-Johnson Syndrome (SJS) is a rare but serious disorder affecting the skin and mucous...

Aziz Ghafoor & Kimia Ameri
Jan 23, 20252 min read


SJS Awareness Month Challenges | This is how you can join the fight.
During August, we have some challenges you can join to support us in our fight. Check it out. August 3rd Sunglasses Day Challenge:...
Felipe Simoes Cayres
Apr 1, 20243 min read
Memorial Video 1
https://youtu.be/_j3UWsEb5bM
hiep725
Feb 8, 20241 min read
Memorial Video 2: In Loving Memory
https://youtu.be/rocX38HOUjE
hiep725
Jan 29, 20241 min read


Supportive Counselling & Education for survivors, families and friends.
Attention SJS survivors & care supporters Coming winter 2024 : to secure your spot Email: info@sjscanada.org Our FREE four weeks...
sjsandtensgroupcan
Oct 13, 20211 min read


Julie’s story
Meet Julie who miraculously survived SJS/TEN, not once but twice. With the help of her supportive mother Jean, Julie now uses her story...
sjsandtensgroupcan
Sep 20, 20211 min read
YC’s story
I was a completely healthy individual until I got the flu vaccine in October 2019. I was tired and a little achy the next couple of days...
sjsandtensgroupcan
Aug 1, 20212 min read
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